Hi & welcome to the site!
What a long fight you’ve had to get to the root of alot of your symptoms, well done for not giving up!
If you haven’t already looked at the info about symptoms in the Newbies Guide Section it’s worth a look to compare yours, here’s a link:
ES Information: Common Symptoms And Possible Explanations For Them - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
You could ask for a referral to one of the doctors on our list who are familiar with ES:
Doctor Lists – no discussion - Symptoms and Treatments / Doctor Information - Living with Eagle
There are several doctors in Florida with experience, you can use the search function on the site to look up any discussions about them. Others opt to travel further afield, for example lots of members with bilateral elongated styloids see Dr Hackman in NC, as he removes both sides at the same surgery- most doctors only remove one side at a time, as there can be significant swelling, but he’s done lots of these surgeries successfully. Other members with significant vascular compression or C1 involvement opt for doctors more experienced in those areas.
Very frustrating that the styloids/ calcified ligaments were seen on a scan already and nobody connected the dots, unfortunately not uncommon…given that you do have some symptoms of vascular ES- lightheadedness, muffled ears- it might be worth trying to get a CT with contrast as it could be that you have some jugular compression. I’m not sure with the US system if your PCP could refer you for a CT, otherwise perhaps your neurologist could, and I would think it’s worth making an appointment with one of the doctors on the list too if you can afford to do that.
Best wishes, I hope that you get a formal diagnosis & can get treatment soon!