My husband looked into plasma apherisis as a tool for long covid. We were going to go to Cypress. Opted against it for a variety of reasons in the end. One kinda “hack” you can do is become a plasma donor at home. They use a different type of machine to sort out the plasma and out clean blood into you. It depends on what you want to achieve with apherisis but this was recommended by a naturopath as a way to help filter the blood. In Canada you can mark your blood for research, not human use, if you have concerns about toxicity.
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I don’t serm to have dysautonomia.
I’ve been told I have nutcracker syndrome, , possible spinal CSF leak, parkinson’s/parkinsonism, and now i am having so much facial pain, i am concerned i may have trigeminal neuralgia. Even my teeth are hurting so bad.
I don’t see any way I can return. I can’t walk through a store.
It does sound like TN, Ben’s Friends has a Facial Pain group you could read up on it, here’s a link:
Finding support for facial pain? Connect with people like you. - Living with Facial Pain
There are medications to help with that, but I guess it might make you worse?
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That is the problem, I have no meds to try and survive.
I have tried dozens of natural options, but nothing touches this.
Have you ever tried an Rx nerve pain medication, @harrisonboy? The ones we see mentioned most often here are Gabapentin, Amitriptyline & Carbamazepine though there are others. Some people have found they have less side effects w/ one than w/ others so it can take some trial & error. Plus, it can take several weeks for a medication to become effective in reducing nerve pain so a bit of patience is involved, too.
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Yes, i have been on so many, I have forgotten all of them.
I have severe side effects from most medications, so end up having to stop taking them.
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Thank you for the reminder. I recall you mentioning this before.