So sorry that you didn’t get any where today, very frustrating for you…maybe you’ll be able to get answers through the Maxfac clinic. I presume Mr Axon had been sent all your scans to review? It is hard to remember everything at appts; I used to write it all down or would forget symptoms. I did get diagnosed through a Maxfac appt- I had a suspected salivary gland stone & jaw pain so had scans & a panoramic x-ray through them, although I was very lucky to see someone who knew a bit about ES, although not that much, that’s why I got to be referred to Mr Axon. So keep the hope that you’ll get answers…
In the Newbies Guide Section we have a few ideas of other conditions with similar symptoms; I’ve attached a link, it’s just names though, so have fun googling them!
Thinking of you both, & hope that you’ll stay on here to let us know how you’re getting on 