Tanava, thank you for taking the time to send me your detailed response. I do appreciate it. I’m beginning to appreciate the complicated nature of the situation. My ENT has referred me to another ENT. I hope the new one will be more willing to work with me.
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This is good to know, Isaiah _40_31. I so appreciate the additional information! ES seems like a syndrome that could effectively mimic many other ailments. I also hadn’t considered a lengthy recovery time post-surgery.
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I hope you’re able to see someone well-versed in ES, @Steve, as getting a solid diagnosis one way or the other will sure help you decide on the next steps you need to take. If the next ENT you see isn’t very helpful either, checking in with one of the doctors on our Doctors List would possibly be more helpful.
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Update:
I had my doctor appointment last week. The doctor reviewed my CT scan and endoscopy results. He said there was no evidence at all of any elongation of my styloids. He stated emphatically that I do not have Eagle Syndrome. He told me he has made an ES diagnosis 10 or so times in his career, and that my test results do not lead him in that direction. He was, however, very interested in the image from the endoscopy. He called in another doctor as well as his PA and they had a discussion over it. He said they thought it looked as if my hyoid bone had been displaced or rotated to the point that one end of it was sticking into my throat. His opinion was that it was either caused by me getting rear-ended by the semi truck in 2020 or by the surgeon performing the cervical fusion through the front of my throat a few months after the accident. He said that my swallowing difficulties were the result of the hyoid bone intruding into my throat as well as nerve damage. He deemed it too risky to try to repair and advised me to learn to live with it. And that’s where things sit for now.
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@Steve - Thank you for your update. I’m sorry that your doctor didn’t offer you any help & told you a second time that “you’ll just have to learn to live w/ your symptoms”.
You DO NOT need to learn to live w/ your hyoid bone rotated/displaced. We have 3 doctors on our Doctors List who do hyoid bone surgeries & one of them specializes in hyoid bone surgeries. You would need to travel out of state to see any of them, but if you can afford to do that, it would certainly be worth your time & money.
•Dr. Karuna Dewan, Ochsner LSU Health Shreveport - Academic Medical Center - Specializes in Hyoid Bone Syndrome surgeries
1541 Kings Hwy, Shreveport, Louisiana, 1-318-626-0050
•Dr David Cognetti, Thomas Jefferson University Hospital, Philadelphia 215- 955- 6760 (Has done many successful surgeries on members). Only removes ligaments if calcified. David M Cognetti MD | Jefferson Health Does do online or phone consults.
•Dr Coniglio, Rochester, John U. Coniglio, MD | Rochester Regional Health does hyoid bone surgery.
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