I’m so sorry that you’ve had symptoms for so long and have never been able to find a cause! When you have your appointment, you could see if you’re able to get copies of your CT scans of your head & neck, then you could have a look at them & see if you can see the styloids & compare them to images of people with elongated styloids- we’re not medical professionals on here, but could have a look if you upload any to give you an idea if ES is worth pursuing. Unfortunately there’s much ignorance about ES with doctors, and radiologists rarely mention the styloids unless they’re specifically asked to look at them.
I agree with all @Isaiah_40_31 has said, & it sounds like you could perhaps have nerve pain from the Trigeminal or Facial nerve with the new symptoms you’ve been experiencing, so a nerve pain medication might help. There’s info about this in the Newbies Guide Section:
ES Information- Treatment: Pain Relief - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
We have had a few members with symptoms of Sjogrens Syndrome (have you actually been diagnosed officially with that, it sounds like you have it?), whether there’s a link or not I don’t know…I have very dry eyes & mouth, this all started around the same time as my ES symptoms started. Ben’s Friends do also have a Sjogrens support group too, here’s a link:
Finding support for Sjogren’s Syndrome? Connect with people like you. - Sjögren’s Syndrome Support (sjogrenssyndromesupport.org)
It’s a good idea to take info with you about ES, I hope that your doctor listens to you, please let us know how you get on! 
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