I was hoping if anyone could give me an idea if my symptoms sound like eagles syndrome.
5yrs ago i kneed myself in my face and broke my nose, a few months after that i started getting a pressure feeling in my head and feeling like i was spaced out, i also used to get heart palps which i did notice more when i moved my head. Drs did all blood tests like thyroid, vitimains etc and Infammatory and all came back clear accept low folate, iron and vit d. Those are sorted now. The rest were clear and have been in further tests. Drs thought sinuses and ENT gave me septoplasty although he didnt think i needed one, operation wasnt successful in any change to symptoms and they left my nose a wreck. I want to point out i could always breathe through my nose, it was just the fact that symptoms started after i broke it and the pressure in my head they thought it was sinuses, 2 ENT appointments since and they tell me ENT wise im fine when shining a torch up my nose and looking in ears etc, he suggested neck was the cause. Also back then i asked my dr to send me to an allergy dr as my throat felt closed up, ;like i was being strangled, she did tests and all ok but wanted to send me to speech therapy as she thought i had a throat muscle problem. I was also sent to Maxofacial by my dentist due to jaw pain and my teeth moving, he was concerned why they are moving so much, always had perfect teeth and they are just moving forwards. Maxo gave me tmj diagnosis. I then had braces as i figured if i got my teeth moved back the other issues would stop, if you look up issues from malaclussion you can see my thinking, 2 weeks i had braces and i was ok and then suddenly i had so much pain, not normal brace pain but agony in face, neck, shoulders, numbness and tingling, burning all on left side of face, i got him to remove bottom braces, pain continued, top ones removed, back to maxo who did mri as i also had a lump develop under my cheeckbone, mri showed nothing worng with jaw joint, maxo now discharged me. Over a year since braces i still cant turn my head, ive had physio, no help, waiting to see a neurologist due to neuro symptoms but ive read up about hundreds of neruo diseases and i honestly think a structural problem and not a disease.
I get left eye blurryness at times, feels like its swollen
TIingling, numbness, burning on left side of face and neck, shoulders and left side top of body
Cant turn head
My pain is under my ear not high at the jaw joint and radiates down my neck
I can recreate pressure in my head, behind my nose if i basically strangle my throat under the jaw
Heart palps sometimes
Muscle twitches - newer symptom
Throat feels closed but im used to that now, when i am sick i get almighty pain and cant really be sick anymore
Crunching, squelching and grinding, catching sounds in neck, physio said its normal but when i felt well my neck didnt even crack
My questions are though, ive had mri for jaw joint, a mri for neck and skull inc brain, i have searched these myself time and time again looking for something they missed, ive compared to mri pics on google of styloid and frankly i cant see it, ive also looked at the photocopied xray i had done at dentist and again i cant see anything, i would have thought that over these various things i would have seen something. I have also which is silly i know had my fingers down the back of my throat just where my tonsils are, i can feel a lump either side which hurts if i push on it but i may just be pushing on a lumpy bit of tonsil so im trying to not assume that is it.
Drs in Uk are really unhelpful and dont take kindly to being told what to do so i wanna be really certain this is something i need to pursue and go see a private ENT for diagnosis.
Also has anyones teeth moved, and does anyone ever feel their top pallette in their mouth is moving or feels broken when its not?
And does anyone ever have good days, i very rarely but have had the odd day where i feel well, i would just assume a bone poking into you that you would never have a good day until removed.
Sorry for the long post.
Any answers most appreciated.