Hey @ryanab , hang in there! I am also now 9 weeks post-op (unilateral IJV decompression) and my recovery has been non-linear, with new symptoms appearing around 6 weeks post op (quite severe trigeminal migraines) which fortunately have since resolved. It’s an unfortunate reality that it takes a while for things to get better after this surgery, but you shouldn’t lose hope. As others have mentioned, 30 days post-op is still fairly soon in the recovery process.
I also want to mention two supplements that I feel helped me a bit post-op in terms of my brain fog and fatigue, which might be worth looking into: creatine and glycine. Creatine is purported to have neuroprotective effects ( Effects of Creatine Supplementation on Brain Function and Health - PMC ), and has been reported anecdotally by other members on this forum as being helpful for brain fog ( Brain fog and creatine ). Glycine, on the other hand, is an amino acid that is a precursor to glutathione, a powerful antioxidant, among its other roles. I feel the glycine in particular has helped quite significantly with my anxiety and helped improve my sleep slightly. My surgeon (Dr Nakaji) was very interested when I mentioned I started taking glycine. He mentioned glycine is a supplement he suspects may improve symptoms for people with this condition, as it may play a role in improving the efficiency of the brain’s glymphatic system, which is thought to be disrupted in people with high intracranial venous pressures (that’s what I understood at least, I might be wrong). Unfortunately, because there are no studies on this, he is in general reluctant to recommend it to patients. He asked me to keep a journal to document how my symptoms fluctuate as I take it.
In terms of dosage, I take 10g of creatine and 10g of glycine in the morning, and a further 5g of glycine before sleep. I do want to underline, though, that as far as I have researched, there is no clear scientific evidence that either supplement should help with our condition, and that I definitely am not a medical expert.