I will look into EDS but don’t think that I have it due to not really having hyper mobile joints, my skin is not stretchy and there is no history of it in our family. Most of my injuries come from my body mostly feeling like pins and needles, like your leg is asleep and so my movements are really uncertain and my legs buckle and make weird angles when I walk because of the numbness, causing the injuries.
Here are some images with measurements showing a possible ventral (front side) compression of the brain stem from the CCI. My odontoid process, c1, is retro-flexed backwards, like a bent thumb putting pressure on my upper spinal cord where it exits the skull at the hole at the bottom (the forenum magnum). All my measurements are beyond the threshold for CCI diagnosis, just need to sit with a good neruo who can review my case, hopefully soon. Also there is an image of the back of my head/neck that shows the c2 vertebra is misaligned and there is extra space on the sides of my odontoid…which are the AAI part of the equation.
Diagnostic Markers: CXA Angle <135 degrees, Grabbs Oaks >9, McReas Line >12. The image below shows the diagnostic measurements and ranges for positive diagnosis.
My CXA Angle is 117-122 depending on the study. Pathological is <135, so I’m clearly there.
My Grabbs-Oaks measurement is 13.8mm, pathological is >9mm, so I’m clearly there.
My McRaes Line measurement is 12.3, pathological is =/>12mm, so I’m there also.
My odontoid, the small white M&M shaped dot in the middle of this image shows how the C2 vertebrae is misalgined. The spacing should be equal on both sides of the odontoid.
Personally I think it stands to reason that if my spine is being compressed right at the very start of it, that would lead to alot of the numbness and shakiness.
The back image of my neck shows the compression and tilt at the upper skull/cervical junction.
I’ve had a right leaning head cock since childhood, which would be explained by the AAI issue.
That’s me as a kid on the left holding my head…literally not a happy camper
I am wondering if I developed Eagle Syndrome because my body was trying to provide more support to my neck and calcified those ligaments to help do that. I am going to make calls tomorrow for appointments, but am wondering what order these issues would need to be addressed in…Eagle first or the CCI/AAI potential issues first. I won’t don anything until I get competent consults for each, I did read about the C1 shaving some Eagle people have done and that is the kind of question I’ll need to have both doctors aware of my other conditions so that one surgery doesn’t create more issues for the other.
One of the biggest helps is laying on the bed with my head hanging off. It releases so much pressure and tension and my breathing normalizes and the numbness in my body reduces and that sense of tension melts away…its magical. I think I am going to try to set up a monitor upside down so that I can use my computer in that position…I have a lot of reading to do on this site
The hardest thing for me mentally is fearing being dismissed again by a doctor, even with all the receipts so to speak that I have now, I am trying to work on that but man is it tough. I’d rather get turned down from a marriage proposal than have to relive that feeling again of waiting months ot see a doc who is in and out in 4 minutes and dismisses everything without even reviewing my records.
Thanks for the reply’s, any thoughts on these images are welcome.