New To Group- Symptoms

The images are very different to the ones we usually see, so difficult to compare to be able to help, & we’re not doctors on here… The 2nd image looks like the left side styloid (right side on the image) can be seen, looks longer than it should be, & quite angled. The neck MRI will hopefully rule out anything else going on, I wonder why he said he didn’t think all the pain was coming from the styloid; unfortunately many doctors are ignorant about all the symptoms that ES can cause. You can have a look in the Newbies Guide Section for common symptoms & what might cause them : ES Information: Common Symptoms And Possible Explanations For Them
It might give you an idea about what might be down to ES so you feel more informed when you see him next? Unfortunately other members have been through something similar- getting diagnosed then a new doctor isn’t sure. It could be helpful too to see what the styloids measure from the radiology report?
All I can suggest is that you see what he says after the MRI results, but maybe go prepared with info about styloid lengths & angles- there’s links to research papers in the Newbies Guide section- to argue your case. If he does agree that it is ES, you should ask him what experience he has with surgery, whether he does intraoral or external, & how much he’d remove.
Mr Axon at Addenbrooks in Cambridge is very experienced with ES, but he does have quite long waiting lists, I don’t know if it would be possible to be referred to him if you don’t get anywhere with Mr Diakos?

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