Hi & welcome to the forum!
What a crazy journey you’ve had, so awful for you to have those symptoms & still no-one takes you seriously…sadly you’re not alone with that, many members here have suffered for years to get diagnosed 
Now that you’ve been told by your dentist that your styloid processes are elongated, and your symptoms fit ES, it shouldn’t be hard to get an appointment with a doctor familiar with ES. Many doctors aren’t aware of it, so rather than waste any more time, it might be worth ringing ahead to the hospital you’ve been referred to, to see if they do treat Eagles. If not, then see if you can get a referral to one of the doctors on our list, here’s a link:
Doctor Lists – no discussion - Symptoms and Treatments / Doctor Information - Living with Eagle
Not sure exactly where you are, but there are several doctors in Florida, you can use the search function to see what mentions there are about different doctors in the past discussions. If you can travel a bit Dr Hackman in NC is really experienced too. Some doctors do remote consults as well so you don’t always have to travel to see them. There are some treatments which can help the pain, there’s info in the Newbies guide section here:
ES Information- Treatment: Pain Relief - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
Unfortunately the only permanent treatment for ES is surgical removal of the styloids, and as it can be a tricky operation it is best to see someone with experience. There’s info about surgery here if you do want to read up on that before you see a doctor, & there’s suggestions in there of what to ask doctors as well:
ES Information- Treatment: Surgery - Welcome / Newbies Guide to Eagle Syndrome - Living with Eagle
Hope that you can get some help soon!
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