Post Operative bi-lateral styloidectomy

It’s easy to feel alone when no one responds. I think there’s a couple of reasons, but not because no one cares to hear about what you’re going through. Did you only have your styloids removed, or did you also have a C1 shave?

I don’t have the medical terminology that some others do, but I wonder if your styloid was having an impact on your IJV. Compression/decompression could be explaining some of your symptoms. They sound aligned with those who have decompression surgery. Not everyone has to have a C1 shave to achieve decompression, some people only need to have their styloids removed. It can take several months for the jugulars to re-learn how to regulate, and it’s not uncommon to have outflow back up or dysfunction after they’ve been compressed for so long. That’s what we’re currently exploring at the moment. Hoping for an ultrasound of the IJVs and getting a referral to a vascular specialist.

My husband had the full Happy Meal (styloids, C1 and digastric muscle removal) and at ~5 months post op he’s experiencing much of what you are. His left side is completely numb/tingling, he has first-bite on the left side, he still gets intermittent pain in his throat and the strangling feeling (albiet different, and maybe now muscle related). He’s now developed daily headaches and dizziness associated with standing and movement. You’re not alone.

There are quite a few threads where people talk about their post op struggles. I recently hyjacked this one: My problems with ES, C1 and SCM are causing compression on IJV - #45 by Val7426

This one also has recent posts and people have discussed their diffculties in other ways: Having surgery without being 100% sure

I wish you much luck finding both answers and relief.

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