I don’t have numbness or cyanosis in my hands due to these causes, but I do have nerve issues in my elbows that cause the area from my little finger to my elbow on both hands to go numb (tingling) in certain positions
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In my case, it doesn’t seem to have much to do with whether I’m standing or lying down. In fact, there are times when I feel better lying down because it allows my neck to rest. So I’m not sure whether this is a venous issue, something mechanical irritating the structures in my neck, or possibly both.
I’ve had an MRI. I’m attaching screenshots of the report. I don’t have the actual files because they’re on a CD.
hope this helps 
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I want to mention something that may be related to what you’re discussing about TOS.
Lately, I’ve been experiencing a rather unusual symptom. It feels like a deep pressure around the collarbone and neck area (I’m attaching a photo), followed by strong heartbeats. It’s difficult to describe, but that’s roughly what it feels like. It may be nothing, but I wanted to mention it in case it could be relevant.
But I don’t have any numbness in my hands or arms. The symptoms I have in my arms and hands are due to ulnar nerve entrapment.
Throughout all this time dealing with this problem, I’ve often experienced brief episodes of pain in different parts of my body, such as in my fingers, lasting only a few seconds. I haven’t been able to identify any direct trigger. Maybe it’s related to this, or maybe not
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Can’t tell from the mri images if there is a possible csf leak. Upload the whole mri exam.
What has your neurosurgeon told you after negative manometry?
Can you try floating in a pool, does your neck/occipital pain improves? Maybe is a cervicogenic issue non related to yugular compression.
I’ll try to download it from the CD.
My doctor hasn’t told me anything yet. I’m waiting for her to send me the images by email.
That’s what I’ve been thinking, that perhaps most of my symptoms are more mechanical/cervicogenic than vascular. However, there is compression of both IJVs, even though the manometry showed a gradient of ≤2 mmHg…
With that little gradient no doctor can assure that a c1 shave would solve your issues. There is a risk that your neurosurgeon does the shave and 3 months later you feel the same. Also talk to Arraez he is a well known neurosurgeon.
Upload the DICOM folder although I doubt is a CSF leak.
I spoke with Arraez’s team, and they told me they would operate if the pressure gradient came back positive, demonstrating hemodynamic significance—which did not happen in my case. It would also be through the public healthcare system, so I would have to wait a very long time, which isn’t really an option for me
So talk to him again, manometry is negative, what now?
Also in what hospital in Spain did you have the manometry test?
- Which side did your head hurt on (I’m repeating the same questions, it’s annoying)?
Where did your head hurt — in the face, ear, and part of the temple, or did your head hurt on the left side, in the back of the head and on the top of the head?
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Please note! When you sleep on your left side, after waking up, you feel more pressure in the left side of your head and in your eye (it feels as if you’ve been hit in the head after the blow).
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Vertigo is more likely to be caused by dynamic compression of the vertebral arteries (it can also be caused by the styloid process, but these are some very rare cases.). You need to do a dynamic angiogram (arteriography of the vertebral arteries and internal carotid arteries) on a DSA. DSA needs to be done with head turns. This should be done to eliminate problems with the vertebral arteries and carotid arteries. And I didn’t understand if dizziness happens now when you turn my head or not anymore? What kind of deterioration do you feel?
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the feeling of nasal congestion and intracranial pressure , and the fact that when you sleep lying on your back , they increase . This may indirectly indicate dynamic compression of the internal jugular veins, which contract more when lying down. It 's possible , but I won 't confirm it yet .
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Do you usually exercise during the day, lift weights, and strain your neck muscles? If you strain your neck muscles, you will feel worse during the day.
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In the picture, this is more related to TOS.
you’re 20 years old, finish with grueling physical training, exercise moderately. You’re young, you’re burning out protein, you have a couple more years to grow your ribs and thoracic region.
Do you mainly feel a fullness in your head, intracranial pressure in the head and eye on the left side, or not? Also, pay attention during DSA diagnostics to the mouth\source of the left vertebral artery.
Quironsalud Málaga
1.The feeling of deep suboccipital pressure increases throughout my entire head, perhaps slightly more on the opposite side (the right side). It doesn’t get significantly worse; I just notice a little more pressure in the deep suboccipital area on that side. It’s a diffuse sensation involving the deep suboccipital region, eyes, face, etc., but it affects both sides.
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I don’t sleep on my left side, but when I lie on that side, I notice more pressure on the opposite side (the right side). However, it changes and fluctuates.
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I don’t get dizzy anymore. It’s simply that my symptoms get worse the more I move my head. In other words, the more I tilt or turn my head, the worse I feel, which makes me think it could be something mechanical.
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I don’t exercise because it makes my symptoms worse. However, something strange is that when I was very physically active (for example, when I worked as a waiter, constantly running around under stress), my symptoms would temporarily improve. So, unless it’s related to activation of the deep neck muscles, I’m not sure what could explain it.
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I’ve also noticed that I sometimes get those strong heartbeats in the area I marked in red when I stand up quickly.
One theory that could fit is that most of my symptoms are caused by irritation of the nerves in that area: reduced intestinal motility and digestive problems, dizziness, tooth and jaw pain, and occipital neuralgia (which has been treated with injections)…
I can’t live a normal life. I want to identify the problem/s and address them, which doesn’t necessarily mean surgery. I just want to be able to wake up normally again and live a normal life
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There are days when I think that might be what it is. But fundamentally, it’s a deep pressure in the suboccipital area that radiates into my eyes and face (everything right and left), almost like a feeling of congestion, along with pain when I turn or move my neck and an overall worsening of my symptoms, as well as problems with sleep and feeling rested…
That’s why I think it could be something irritating the nerves in that area.
What is DSA? Is it the contrast venography? Contrast injected through a catheter, right?
Is there any doctor I could send my scans and test results to who could help determine what’s actually going on, whether it’s vascular or not?
I think the physical strain may have caused something in that area that led to nerve irritation with movement, in addition to the IJV compression by C1 that I have
In fact, 2 mm Hg is an ideally low pressure. But you have one compressed IJV, and there’s a bubble on the right side and particaly compression of the right IJV. Your pressure probably shouldn’t be more high, but it shouldn’t be that low either — no more than 10 mm. How was the pressure gradient measured for you? Maybe they measured it incorrectly? It’s very strange.
DSA yes. Arterigraphy and venography
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How did they measure your blood pressure? Did they take two measurements on one side: one in the transverse venous sinus, and the second in the IJV itself, below compression in the C1 area (pressure difference)? Or did they take one measurement in the IJV below C1? Or did they take one measurement in the transverse venous sinus?Did they insert a pressure sensor (something like a catheter) into your femoral vein?
Lying on my back, with my head turned to both sides. They used light sedation, but I wasn’t completely asleep.
Do you mean that the left side is worse than the right, and that there is dilation of the venous bulb on the right? Were you able to confirm the dilation of the right venous bulb? I don’t really trust what the reports say anymore.