I applaud your reply to the doctor who discharged you @geppard! Theyâd also see ES more often if theyâd educate themselves about it. Weâre convinced itâs far more common than doctors think. Itâs just wildly under diagnosed.
Your heart feeling funny could have been from carotid compression which could also affect your eyes, but the heart symptom could come from your vagus nerve being irritated by your styloids if they are elongated. Did anyone comment on your styloids in the imaging you just had at the hospital? Were you able to get copies of your scans? If not, try to get copies as youâll likely want them to give to whomever you see for an ES consult.
Thank you for your suggestions. I do have an âofficialâ diagnosis from a local otolaryngologist. He didnât actually put the words âEagle Syndromeâ on the office visit summary I received afterwards. He wrote âShe has elongation of right styloid process and calcification of left stylohyoid ligament.â As soon as I can, I want to convert my CT scan (with contrast) into a 3D format using the things you mentioned. I was so excited and in awe to learn we can do that! I canât wait to get it done. Question. After my image is converted to 3D, will it show where the location of the elongated styloid process and calcified stylohyoid ligament are in relation to arteries and/or nerves? It was extremely frustrating for me to have this âofficialâ diagnosis of ES while in hospital yet not one medical personnel showed any desire or effort to see if my double vision was connected to ES. This evening I saw pictures showing what double vision is. My double vision didnât look like what the images were displaying. There was no overlapping of the images (individuals). It is like a twin came in and sat down beside them for each of the five people, with a space between the images. Images were very clear, then got blurry. I hope I never have that experience again! Before this happened, I had the attitude I can live with ES and not have the surgery to fix it. However. this experience has changed my attitude and made me realize if the double vision was truly an ES event, then what would the next âeventâ be, something more serious!! I canât wait to get a consult with a different ENT who is knowledgeable about ES. Thank you so much for being a ârealâ person who takes your valuable time to share ES info with me rather than my going through this by myself! Your input, and that of others, is such tremendous help to me as I tread âthese new watersâ!!! I am so blessed and thankful to have âhappenedâ upon forum.livingwitheagle.org!!
A CT with contrast should show how close the styloids are to blood vessels, although if your head was turned when you had this âepisodeâ, then unless the CT is done in that position it might not confirm if it was caused by ESâŚbut hopefully it might show well enough if the styloids are very close etc.
Iâm glad that your eyes are okay for now & hope that it doesnât happen again
I hope youâre able to get your imaging converted to 3D soon, @geppard! Seeing the CT images in 3D opens up a whole new world & makes it easier for you (& us) to see whatâs going on in your neck.
I also hope you have no ârerunsâ of your event at church! That does sound very scary!
Right?! I couldnât believe how many people looked at my CT and said it was âperfect.â I mean, my left styloid was CLEARLY way longer than the right one. Even I could tell the difference with just a glance at the scan, and I barely even knew what I was looking at!
Iâll definitely keep you all posted on what I find out through neurology. I have tried amitrypitline, gabapentin, oxcarbazepine, and pregabalin already. So far, the only one that seems to maybe have some effect is the pregabalin and Iâm only on 75mg twice a day right now (I temporarily saw a different neurologist while I was waiting for the Mayo referral).
Actually my vocal cords are functioning perfectly. No MTD, no paralysis or anything. Dr. Entezami didnât feel that it was a vagus nerve issue, but we did talk about it. Itâs just that my throat muscles guard because of the constant pain. So, my throat is tight and that constricts my voice and makes it fatigue easily. But thankfully no issue with my vocal cords themselves. So, as soon as we resolve the other issue, my voice should be able to work freely!
Interesting about your throat muscles guarding/being tight & thatâs affecting your vocal cords. I can see how that could cause a problem. I guess I canât alway blame the vagus nerve for vocal dysfunction then. Thatâs gotten to be way too easy of an answer!
Hi @geppard I have experienced exactly the same double vision as you, two identical pictures one beside the other, with a gap in between. Its happened a few times and very scary I must admit. I am diagnosed with ES left SP and waiting surgery (UK). Just for reference my SP is abutting my ECA, but I have not been told this is the cause of these strange events.
Thank you so much for letting me know!! Now I can feel assured it is ES which caused my double vision. Could you clarify for me what ECS stands for? Iâm sitting in my car getting ready to go see my heart doctor for an appointment and I want to bring this issue up with them. When all the test in my hospital stay this past weekend, did not reveal anything pertaining to a stroke, and my eye doctor said the muscles in my eye are okay, it has to be Eagle Syndrome! Did you say you had more than one episode of double vision? Thank you for taking the time to share with me your experience!!!
Apologies I have only just seen your message. ECA External Carotid Artery, mine appears to by wrapped over the top of my Styloid Process, but I also have Internal Jugular Vein IJV compression aswell between my SP and the Transverse Process of my C1, so its difficult to know what symptoms are being caused by what. I have had around three or four episodes of double vision, the picture seems to snap back quickly, scary and very strange.
