@Snapple2020 is pretty expert on EDS, so hopefully she’ll see your post and be able to give you some advice, otherwise you could message her privately. Here’s a link to a post she did with one of our members who has been diagnosed with EDS & POTS:
Overwhelmed and waiting for official diagnosis - General - Living with Eagle
And another post about EDS, @hyperichard has EDS and had surgery for ES:
Those with EDS or suspected EDS what helps you? - General - Living with Eagle
I do think that we’re all different, even with just ES, so recoveries can very quite a bit, as well as what symptoms are resolved, so if you throw in EDS & POTS as well then it could be difficult to predict what you’ll be left with. I think it’s best to think of this as a journey, and the ES surgery is a step in the right direction to get you as good as you can be…
Hopefully others who know about EDS will give you some good advice!
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