I’m sorry that your surgery hasn’t been successful, there is a chance maybe that the styloid has grown back as occasionally they can…
A far as I’m aware ES can’t cause aortic aneurysm; the styloids are in the neck whereas the aorta goes from the heart down the through the abdomen. If the styloids impinge on the carotid artery in the neck then they can in extremely rare cases cause a dissection or a stroke…
If you suspect you have vascular ES then a CT with contrast would hopefully show this, more detailed testing can be done as well. There are a few of the doctors on our list who are experts with VES; the closest to you would be Dr Costantino in NY, or Dr Fargen in NC. Otherwise Dr Hepworth in CO is very experienced too. They would be your best bet for revision surgery & VES surgery, here’s a link to the Doctors List so you can see their details:
Doctor Lists – no discussion - Symptoms and Treatments / Doctor Information - Living with Eagle
Unfortunately as there are so few doctors treating VES, then you would have to be prepared to travel a bit…
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