I just joined this group as of today because I finally reached my breaking point and couldn’t bare to fight this alone anymore. A brief summary of my story…
Around 1.5 years ago I started experiencing multiple symptoms and have been in chronic pain since. The pain is in the back of my head/base of skull, intense head pressures/headaches/migraines, neck pain, intense ear pair that also makes very strange noises, nose/facial pain, eye pain, occasional tongue pain, soft palate pain, and always a tight/very painful throat sensation. I’ll mention everything is left-sided. At times when it’s at its worst (like right now) I feel as if I could have a stroke at any minute. It’s like I can feel every inner working of my body. It’s too surreal. Basically just a constant pressure 24/7 with the other symptoms sometimes being off the charts in pain and other times it’s more mild and I have learned to tolerate it day to day.
I’m here because I’m trying to find the best option for dealing with this. I’ve seen many doctors and have been diagnosed with Trigeminal Neuralgia as well as Occipital Neuralgia, but I always thought I’ve had either Glossopharyngeal Neuralgia or Eagles Syndrome because of the everyday constant episodes and areas of pain. Theres even a chance I could have them all for what I know.
I’m trying to make this short…I will say I am very thankful that groups like this do exist. Since this all started I’ve felt extremely alone and have been severely depressed and developed anxiety because I just don’t know when or if it will ever end.
As of now I’ve only been approaching this condition in the most natural ways as possible (acupuncture/chiropractic care/supplements) because I’m a very health conscious person and taking medications or getting unnatural surgeries absolutely frightens me.
So I’ll wrap this up now and end it with some questions that maybe some of you could help me answer.
How do you cope with the pain?
Is surgery something you recommend?
Does anyone regret surgery?
Should I try pain medications before getting surgeries?
Has anyone had relief with injection shots?
Side effects of medications or injections?
Side effects from surgeries?
Has anyone tried natural therapies to cure/manage this?
Does anyone know certain trigger points that cause ES?
How to stop pain? What should I avoid to lessen episodes?
Any doctor referrals that live in Metro Detroit area? (Ann Arbor)
Also I am a 27 year old female, Is it even more rare for someone to have such extreme symptoms at a youngish age?
Thank you so much for reading this and I hope to hear back from some of you. Anything else that would be helpful is very appreciated. Thanks again xx