No worries! I confuse so easily these days…!!!
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How did you make out with Dr Constantino?? Did you have surgery??
I am only at the consultation part… We meet on Thursday, which will be my first meeting with someone knowledgeable about this problem so it will be interesting at a minimum. I’ll let you know how it goes.
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Yes please, good luck hope all goes well.
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@lilwider Unfortunately Dr. Costantino’s office called Wednesday to cancel the appointment. They said due to a surgery emergency and would call back to reschedule. Haven’t heard back yet.
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@Leah - I’m so sorry that happened. Very frustrating for you!! There is no harm in calling them this coming week to follow-up even if they told you they’d call you. It may help you get back on tDr. C’s schedule sooner.
So sorry to hear, hoping you can get back in quickly
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Best explanation of CT Scan for us who aren’t well-versed. Thank you @vdm
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Hi there! Did you have anything else done other styloids removed, such as c1 shave? Who did your surgery? Were your styloid issues clear on imaging?
@Steven1976 - I had my styloids removed - one in 2014 & the other in 2015. I had a cycling accident w/ a head injury just prior to my surgery in 2015 which put the surgery off till later in the year. The accident started my journey w/ symptoms that were diagnosed as Meniere’s Disease ie hearing loss, vertigo, chronic loud tinnitus. About 6 years after the accident & subsequent styloidectomy, I received info that my Meniere’s symptoms might be from IJV compression so I began my investigation to see if I had that. An MRV & CTA were read as normal by radiologists, but I uploaded them into dicomlibrary.com & shared the results w/ a former member of this forum. He returned 3D images to me that showed I had bilateral IJV compression caused by soft tissue on the right & by the IJV being squashed between my styloid stub & C1 (which had shifted to the left as a result of my bike accident 6 yrs earlier) on the left. My MD symptoms were all on the left.
I finally had surgery w/ Dr. Hepworth last year in Oct. Unfortunately, it didn’t restore my hearing, but it did stop the progression of the hearing loss, & it stopped the vertigo episodes. I still have chronic loud tinnitus (left ear) which may be due to another surgery I had tin 2019 in an effort to save my hearing, but required some bone to be removed from my inner ear, & that may be what’s perpetuating the tinnitus.
My initial CT scan was done w/o contrast & the surgeon who did my first two surgeries doesn’t look for IJV compression nor does he deal w/ it if it does exist. Below is my diagnostic scan:
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