I’m sorry to hear your symptoms have come back @July123! It would be good for you to get a new CT scan with contrast to see what it shows. Prof. Sultan in Galway is very experienced with ES surgery. It would be worthwhile getting an appt with him.
Professor Sherif Sultan, Galway Clinic has performed ES surgery & published a research paper, https://sherifsultan.ie
Thanks but he’s too far from me.
Then I hop Prof Stassen can help you, @July123.
Hey miki, what are your symptoms? I been really going through it all year and I got diagnosed with eagle syndrome recently. Been feeling brain fog lightheaded and a whole bunch of symptoms.
I am just starting the process of establishing a relationship with the Camino ENT to address the VES. I now have the scans to support the prognosis. One main symptom is an astoundingly loud ringing in the right side of my brain, not to be confused with tinnitus. I can’t prove that it is a result of the VES, so I just have to proceed and hope for the best, but prepare that not all my symptoms will go away . I chose Camino ENT based on the research and reading from this forum. I will keep you posted. Caring Medical also gave me a series of exercises to correct cervical instability and I am doing them. I have a short list of symptoms that I have that may be related to or caused by the VES. The one thing for sure as shown on my CT scan with contrast is the jugular vein on the right side is being pinched off. Thanks for reaching out, I think this form is great.
@MikiDora - Camino ENT does NOT deal with vascular ES/IJV compression. I highly suggest you establish a relationship with Dr. Damrose at Stanford who has recently started doing IJV decompression surgeries & was trained by Dr. Hepworth who is one of the most skilled doctors in the US for doing IJV decompression surgeries w/ styloidectomy.
Dr. Damrose was Dr. Samji’s mentor when Dr. Samji did his medical residency at Stanford.
Thank you so much for your insight. I’m just starting on this journey since I only found out four weeks ago that the styloid is pinching off the jugular vein, and who knows what other things it’s doing. I value your experience since you’ve been living with it a lot longer than I have. Caring Medical was a great starting point because they actually could qualify what things are wrong with me. It’s very liberating to finally know. I’ve had good luck with the physical therapy. But I know I have to address the two issues of the jugular vein and the styloid. Your symptoms sounds similar to mine. My most profound symptom is a loud ringing in my head only on the right side. I’m getting ready to accept the fact that even if I get this stuff fixed that sound may still be there. thanks again for your insight. Philter
Hey everyone, I am new to the group. Is there a TLA dictionary? That’s three letter acronyms. There’s so many floating around that. I don’t know what they mean. Thanks.
@MikiDora - Please ask if you have questions about unknown acronyms used in a post. The ones I think you’ll see most often are below, & other members can add what I miss:
ES - Eagle Syndrome
VES - Vascular Eagle Syndrome
VOO - Vascular Outflow Obstruction (i.e. IJV compression)
IJV - Internal Jugular Vein
ICA - Internal Carotid Artery
TOS - Thoracic Outlet Syndrome
FBS - First Bite Syndrome
EDS - Ehlers Danlos Syndrome
hEDS - Hypermobile EDS
vEDS - Vascular EDS
MCAS - Mast Cell Activation Syndrome
CCI - Craniocervical Instability
AAI - Atlantoaxial Instability
That’s a start. It does seem sometimes that we’ve developed our own language here. 
I do have to look some up myself
Hope that @Isaiah_40_31 has covered them all, feel free to ask if there’s any more!
I have low grade tinnitus. Sometimes I get a very loud ringing. I notice it more when laying down but I have had it when upright. The last time I had it I moved my head to see if it stopped. It did. It could be tinnitus or something else. Next time try methodically moving your head very slowly and pausing and see if you can get it to go away. It may not work every time. I have only tried it once. Usually I just try not to pay attention to it and eventually it would go away.
My right styloid is the biggest problem. The loud ringing was on the left side but I don’t remember which side I was laying on when it happened. I was shocked I could get it to stop so quickly.
@MikiDora - I’m sorry I didn’t comment on this yesterday. Tinnitus can seem like it’s in your head especially when it’s very loud. When mine first started, the tinnitus was so loud & invasive it made me feel like my brain was scrambled. I couldn’t think & felt panicky. It was pretty awful. Getting my left styloid shortened reduced the volume of the tinnitus but the hearing loss continued to progress & vertigo became more a part of my life. That subsided for two years but has recently returned. I’m sure hoping that my IJV decompression surgery restores at least some hearing & stops the vertigo for good!