Strongly Believe I’m Experiencing ES

Thank you Jules! I appreciate your kind words. :blush: I heard back this morning. I will wait now for a date for surgery. A question I have is, he cuts the styloid off as far as he can reach and the nurse says it ends up about 1cm left. Is that good for it not to grow again? Thank you!

@Deb7 - 1 cm is nice & short, very close to the skull base, & you most likely won’t experience any regrowth. That’s how short Dr. Cognetti cuts the styloids back & he has done MANY very successful ES surgeries over the last 10 years.

I look forward to hearing when your surgery is scheduled. I’m so glad you’ve made this good progress. If your outcome is good (as we hope!) we’ll add Dr. Chang to our Doctors List.

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Thank you @Isaiah_40_31, that makes me feel better. I sure wish I had a surgery date. I had another terrible night. I think my Glossopharyngeal nerve went wonky for whatever reason. Had a terrible taste in back of my mouth, left side tongue irritated, bottom lip swollen and painful on the tip of my tongue and tingly. If I tried to lay down my oxygen level would drop to 93 and heart rate go up. Even sitting up same thing. I had to get up and walk around and do things to keep my oxygen level up. It felt terrible. I am so over all of this. I literally did not get one minute sleep. :sad_but_relieved_face: I feel so bad for everyone who has to deal with this terrible condition.
On another note, I asked about other Eagle’s surgery Dr. Chang did and the results for people. I was told he is selective who he performs surgery on. The nurse said he only performs surgery on those he thinks will have a good outcome. She said you are one of them. She also said he does not remember any patients who did not have their symtoms completely resolved. There is that.
Thank you for encouraging me in this to go forward, Having all this info beforehand has been a Godsend. :blush:

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So sorry that your night was awful, it sounds really grim…sending you hugs & praying that surgery will be soon and successful :hugs: :folded_hands:

@Deb7 - It wouldn’t hurt for you to call Dr. Chang’s office to let them know your symptoms are getting worse so you can’t sleep at night & ask if they can give you a time estimate (days, weeks, months) as to when your surgery will get scheduled. It’s ok to push a bit when you’re suffering like you are!

I’ll also pray that you’ll get a surgery date very soon.

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Thank you Jules. I think it was the worst ever. I was never so glad to see morningcome. Every day is a new day for me and I am always grateful to Jesus for all the help He provides in my time of need. :folded_hands:t2::sparkling_heart:

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Thank you so much for suggesting that. I will go on my chart and see if I can get in touch with his nurse.

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If the answer for when you can schedule surgery isn’t great, you could ask to be put on a cancellation list if you’re able to go at short notice? :hugs:

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Another good tip thank you! I did not think of that. :blush:

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