Hi @Eli, there was a good post from @DeeCeeNorth today where she discussed her frustration w/ post op symptoms that haven’t subsided & results of a post op scan. She contacted @Kjetil Larsen whose name comes up on this forum somewhat frequently for a second opinion. He’s in medical school in Colombia but has an excellent understanding of ES, HBS & the problems they can cause. It would be very worthwhile for you to send your scans to him & get his opinion as to what he sees could be causing your worst symptoms as that could give you a better idea of what your next step should be. The only contact information I have for him is mskneurology.com which is an organization he started. If I find out a better way to contact him, I’ll let you know.
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