Surgery scheduled with Dr. Kamran Aghayev

I’m glad that you weren’t in too much pain after your surgery, and that your collateral veins are smaller, that’s hopeful! Keep us updated with any improvements if you can :hugs:

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How are you feeling? Has your condition improved? Which symptoms have gone away, and which remain? How are you eating?

Hi there!

I am doing quite fine, actually. I was a little surprised to feel my symptoms resurfacing and pressing on around the start of month 4, but I have since learned that this is quite common due to the re-myelination process.

Having calmed my mind of these symptoms , I am having even less symptoms a couple of weeks later. Eating and everything else is quite normalized already.

Some tightness at my left surgical site still, but it is improving slowly.

I had this “silent window” in the first months aftet surgery, where I didn’t feel a single thing out of my symptoms.

I seem to be following a similar track to this patient’s recovery:

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I asked Gina ))) But it’s nothing to worry about, I’m glad some of your symptoms have gone away. Could you tell me in more detail what symptoms remain? After all, as Dr. Kharatsepyan said, fibrous tissue/scars can still form in large volumes even after removing the digastric muscle. It would be great if you could share the CT scans before and after the surgery (anonymously).

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I’m just feeling some tongue tightness and a little bit of molar pain.
May get a temple headache sometimes, but all of these symptoms are really light.
I’m taking no medications to alleviate these symptoms.
Before surgery I was quite reliant on taking Pregabalin to calm it all down.

I also shared my CTA scans before surgery. You can find them in one of my first posts. :smiley:

The post is called “My pictures and status” or something like that.

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Hi
I am eating fine. My head pressure has gone (it was not bad) - I have tinnitus still which is severe. I am hoping it will go with time as Dr Aghayev was only able to decompress my non dominant side. My dominant side is compressed by scar tissue from my first surgery in Australia.

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I hear them say scar tissue becomes more soft after a while.

Is it long ago since your surgery?

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Whichever the case, I am glad the information provided here is the same as what I’ve found.

The more sources to alleviate my irrational worries, the better.

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If your dominant IJV is still compressed, it may indeed be the cause of tinnitus. But other causes of tinnusitis are also possible-these are problems with the vertebral arteries, intracranial conflict between the cerebellar artery and nerve, or simply a formation in the head (cyst). Hopefully your dominant IJV will open up a bit over time, and the fibrosis/scar tissue will decrease a bit.

I have a dilemma now, and I also wonder if it’s worth going to the right side, where I’ve already had surgery. First of all, surgeons all say that this is a big challenge. Secondly, the surgeon may not be able to do anything about the fibrosis anymore.with scars , and accordingly , I will cut the right side again in vain (useless operation). Although Dr. Khandzratsian confidently(assuredly) says that he will climb into the operated\surgery side(what will surgically operate on this side). But Dr. Agaev also told you with confidence(assuredly) that he would get into the area where the operation had already taken place. However, the result is different. Everything is complicated.

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Hello Dr Aghayev initially told me he would not be able to remove the scar tissue but that he could do an exploratory on my operated side. However i told him i had a blood clot in my surgical field and after reviewing my scan he thought he may be able to remove the scar tissue as the blood clot may have saved the ijv from being encased in it - unfortunately not the case

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I hope so - it has been 10 weeks since my revision surgery

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Hi - yes i am investigating my cervical spine for issues with a MSK specialist - i have terrible degeneration. When my tinnitus started I had overnight cervicogenic headache which prolotherapy solved for me

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In fact, yes, problems with swallowing, dysphagia, pain in the face and ear are most likely Eagle syndrome (and yes, these symptoms can go away after months/pain -it can take several months to recover.). And yes, intracranial pressure may be related to problems with the veins. But other symptoms, such as dizziness, TIA, fainting, are extremely unlikely to relate to the veins. And when surgery is performed, but these symptoms do not go away after it, then the problem is not in this area. But you might be told bedtime stories that it takes months, a year, 10 years, or 100 years to recover. ))))) These are just bedtime stories—and very expensive bedtime stories at that. ))))) I know at least two people for whom this condition, their well‑being/symptoms, changes several times a day or a week; also, immediately after the surgery, they experienced relief for 2–3 weeks. So it’s either a poorly performed surgery (fibrosis/scar tissue), or if you see that your veins have opened up, then the problem isn’t in that area, and it’s just expensive bedtime stories.)))

So why did he then try to surgically operate on your already operated side(performed surgery side) if he himself wasn’t confident? And in the end, during the operation/surgery, he realized he wouldn’t be able to do anything about your operated side(surgery side), there’s no result on that side, and he returned the money to you for that side? I understand that it’s normal when the service isn’t provided and the money is refunded. Or another motto — to promise a lot, but it’s not guaranteed that there will be a result, and no refund of money.

That’s why I’m more sympathetic to/like the surgeon Peter Nakaji. Maybe he doesn’t understand the laws of hydrodynamics and makes mistakes in some places, but he orders measurements of manometric pressure, refuses surgery, do DSA arteriography and venography ,and suggests starting only from one side, and suitable individually — for those who remove only the styloid process, and for those who remove C1 or the muscles. In other words, he’s more cautious, he thinks about the patients, and that means he’s more professional. But when a surgeon suggests doing everything at once from both sides, doing as much as possible, doesn’t bother with diagnostics (only CT), does everything to the maximum(C1 ,muscle styloid), and doesn’t give any guarantees, he’s just an ordinary businessman.

Two sides means twice as much money, but that’s all it means.Nothing prevents you from performing a second operation later if needed ( Or remove only the styloid process on the other side. )

I live in New Zealand and wanted both sides done at once. I am very happy with Dr Aghayev - I wish I had gone to him in the first place. He did an amazing job on my left hand side - I had all feeling back within 3 weeks. It was unfortunate he couldn’t remove the scar tissue but it was extensive from my first surgery

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That’s possible.Yes, it’s your desire to do it from both sides at once, your decision, since the distance is very far. But in most cases, you can start from one side. And from the other side, remove only the styloid process (it’s very important to remove it right down to the root).

I strongly disagree with this statement. In our experience on this forum, symptoms such as dizziness, TIA, fainting, etc., are almost always related to artery compression & when ES is the diagnosis, they are possible indicators that the ICA, ECA &/or common carotid artery(ies) are suffering irritation or compression by the styloids, calcified stylohyoid ligaments, &/or the greater horns of the hyoid bone. These symptoms are in an area close to the jugular veins & can’t be dismissed as they are quite serious & nearly never resolve with jugular decompression surgeries, but will resolve once the source of carotid compression is removed.

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I’m not saying it can’t be, but it’s very doubtful. Many people have internal carotid artery stenosis and have no symptoms. Vertigo is mainly caused by vertebral arteries. I’m not saying it’s impossible; I’m saying that dizziness is more related to the vertebral arteries. And not all symptoms can be solely attributed to the styloid process. The cerebellum is the part of the brain that is responsible for coordinating movements, maintaining balance, and accurate muscle contractions. It is closely related to the vestibular system (responsible for the sense of balance) and other systems that provide spatial orientation. The vertebral arteries supply blood to this part of the brain, the cerebellum. And I’m not saying this from the forum, all the doctors in the world are saying this. There are many medical articles that state that dizziness is one of the main symptoms of problems with the vertebral arteries. And study what the circle of Willis is, and what kind of connection sometimes exists between the internal carotid arteries and the vertebral arteries, especially when the vertebral arteries are hypoplastic.

I also know several people who have had their styloid processes removed from both sides, and the pain in their jaw and eye has disappeared, but the feeling of dizziness has not disappeared (and there is no longer any nerve innervation or compression of the internal carotid artery becouse no styloid process). TIA may be due to compression of the internal carotid arteries. But I repeat once again, I personally know several people who have had their styloid processes removed from both sides, and I am well aware of the statistics and the effect after this operation in Russia. A lot of styloid processes, were removed in Russia, only one Dr. Nazaryan removed the styloid processes in more than 300 people.After removing two styloid processes, 50% or more of patients experienced only partial relief after surgery, and many continued to suffer from dizziness/vertigo, etc (The symptoms remain).

And you don’t even need to look far — the forum is full of people who didn’t experience any positive effect after having their styloid processes or C1 removed.