Hi @Blodyn thanks for your reply. Sorry you’re in so much discomfort at the moment. Where are you in your es journey? Will you have surgery?
Are you seeing a PT? I have/had a lot of the TOS symptoms but also the neck discomfort and feeling like I couldn’t find a place to position my head. Is yours a calcified ligament or elongated styloid?
Sitting on a chair without my head supported aggravates my symptoms. I think it has something to do with the neck muscles and possible compression of nerves by the tight muscles. I have posted some simple exercises above that my PT has suggested for me, which help to strengthen the brain/shoulder connection while repositioning the top the shoulder slightly back (as it’s rolled forward and my arm is very heavy). I have noticed a significant difference already in the tension at the sight of my incision, which I presume was also there before the surgery.
I wonder if there are any similarities between your posture and mine?
Unfortunately I also had those intense episodes of ‘death’ symptoms, which I would get when just standing at a museum or gallery or department store, standing looking at the displays. Something to do with the angle of my neck, combined with my posture I think. I also get something similar when sitting on a chair at work and feeling stress from an upcoming deadline or a generally stressful situation. In those situations I get a crazy thumping heart and breathlessness, pain down my arm and in my neck and teeth, similar to what I imagine a heart attack would feel like. Luckily I’m not working at the moment. I’m hoping with PT work and spine realignment work I might not have to experience those again - fingers crossed.
I really hope you can find some ways to manage your symptoms so that you can do more of things you want to do.