Thought it was time to post my story…

Hello there! I could have written your story, almost word for word! I have had a clicking throat for 8 months now and EVERY time i go to a doctor about it, i am met with a blank face. Feel free to go read through my comments on here, but basically i think we are suffering the same condition. I have tried: medications for reflux, medications for anxiety, muscle relaxants, valium (that was a fun one), physiotherapy, neck stretches, and most recently injections into my neck. I was also hospitalised for self harm because of both the discomfort and the mental feeling of being ignored and gaslit for months. I know EXACTLY how you feel. It is awful. My second ENT finally agreed that it is NOT to do with my anxiety nor my muscles nor my loss of neck curve (that was ruled out ages ago but I’m still doing stretches just in case the xray didn’t show straightening of spine), but was actually a PHYSICAL condition. He is willing to do surgery, but I’ve been referred to a third ENT by the senior radiologist in my state, and second ENT is happy to liase with him. So i think between them there will be a solution. But basically i just wanted to say you are NOT alone. And yeah i totally understand your symptoms. It is a long road to diagnosis, but please don’t neglect your mental health either. Once the nasty things have been ruled out by CT scan it’s just a matter of finding someone to help you. I’d be happy to have a look at your CT scans in 3D to see if they are similar to mine. But in the meantime, I’m happy to try and support you along your diagnostic journey. Hang in there.

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