Tingling in Extremities

That sounds really difficult Milly, so sending you a hug :hugs: Doubly hard when there’s overlapping conditions… I would just say that if your styloids or calcified ligaments are very close to the carotids, then this is all the more reason to get them out! Dizziness, eye pressure & balance issues can be vascular ES symptoms. More experienced ES doctors will still do surgery to relieve vascular symptoms, so it might be worth getting a second opinion, especially if you’re able to travel. Dr Hepworth on Colarado is very experienced, & I know it’s a long way, but Dr Samji in California will do phone consults too, so you could send your scans there. There’s info you can look for in past discussions, & I’ll attach the Doctors List here:
US Doctors Familiar With ES, 2019 - Symptoms and Treatments / Doctor Information - Living with Eagle
The only doctor we have on the list in your area is Dr Conyer- have you seen him?
Hope that you are able to get some treatment, & that the medication for the spondylitis helps…

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