I’m hoping someone can throw some light on some of my symptoms.
Not sure quite when all this started for me but it’s certainly years ago.
I’ll try and be brief.
Always had back/hip/shoulder pain.
2012 started with popping in ears and jaw locking.
2014 years ago sudden onset of very severe right sided post nasal drip - gush would be more accurate. This subsided but is a constant feature and comes and goes in severity - still can’t sleep on my back as I choke. Sometimes get clear liquid from nose and metallic taste. Asked ENT about CSF but advised very unlikely.
2015 Chest pain like a band and heart palpitations. Consultant checked heart and all clear. Told costochondritis
Over last 10 years severe positional headache (better standing & these have stopped now,) facial (malar) flushing, breathlessness, sudden very high BP, sudden high heart rate, pain in jaw when eating on right, nausea, pain in neck, difficulty swallowing and feeling of lump in throat, temperature changes, pressure in head, tinnitus, objective pulsatile tinnitus, vision problems.
More recently facial spasm, Horner syndrome, twitching, pain at back of head (all on right).
All brought to a head (oops) last year with sudden onset of severe vertigo after leaning over dog for hug. Since then vertigo has never really gone plus dizziness and terrible brain fog. I told my husband it’s like being constantly drunk without the good bits! Also symptoms which are harder to explain with Eagles unless I have vascular. These include tremor, speech problems, memory & cognitive issues, numbness and tingling in arms and legs and fine motor skills, random pains in hands and feet, all of which come and go (very dependent on head position).
My Eagles diagnosis was of mild calcification after a Cone Beam CT scan of my TMJ, so I had written it off but when I saw left sided image which showed some calcifcation of the stylahoid ligament too I thought it was worth pursuing. I have an appointment to see Mr Axon in UK on Friday but I want to make sure I’m up to speed with vascular symptoms and ask what you guys have experienced. (think this includes you @Jules). Is this enough to cause vascular from your experience or am I wasting Mr Axon’s time. Left side -
Right side -
Also CT scan identified two other calcified bits which I thought might be calcified arteries as found a similar example on line. Obviously not looking for diagnosis but is it worth me mentioning it to Mr Axon or will he think I’m potty? Left with calcified bits showing -
Image of calcified carotid artery at C3/C4 - mine are at C2/C3 and a bit smaller. Is this something for an Eagle consultant or will it just annoy them?
Just for info since vertigo episode have had Brain MRI (said not MS - gave me tablets for migraine), CT with angiography to check for Thoracic Outlet Syndrome (haven’t seen scan) - my symptoms exacerbated by looking right and left so this may have missed something I suppose. Blood test for lymes, thyroid and lupus. TMJ consultant thinks I have hypermobility. Has administered steroid injections on right side of neck when styloid process is.
Thank you so much in advance. Hoping I can find my way out of this nightmare!