Made a mistake above on measurements was 31 & 34 not 24
@delusive hi and I hope you are doing ok?
Would you be comfortable sharing the name of the surgeon you saw in London? I’m calling round lots of surgeons trying to expand the list of options in the UK and it would be really helpful if you could
Sorry was not on here for some time he is ENT Surgeon Dr. Rupert Obholzer Guys Hospital London UK he is the Head of the Unit a very nice Man
Aidan, I’m sorry I can’t remember, did you have surgery with Dr Obholzer? It’d be great to get the name of another doctor to add to our list!
No, he refused me Surgery he does not think my symptoms are from Eagle Syndrome he thinks it is something else, he also said the same to my Friend she went to see him. The other Doctor is at Addenbrooke Hospital I think his name is Dr. Axon there are not many in the UK who do the procedure also he has long waiting lists so check with the Group on Facebook Eagle Syndrome UK xx Hope all is well with you thanks Jules xx I still think I will go see other Doctors for ES
@Aidan - try Mr.Hughes in London. We have some members who’ve seen him for surgery, & he is more proactive in being willing to treat ES. Mr.Axon is now more limited in doing ES surgery & has to be more selective about who he sees so is turning away more people w/ ES now.
Okay, not one to add to the list now! As @Isaiah_40_31 says, Mr Axon is doing less now, but good that we’ve been given Dr Hughes’ name as well!
ok thanks Isaiah, what is his first name & what hospital do you know?
Here his contact info, @Aidan. Hope you can get an appt soon. There have been a lot of discussions about him recently. Here’s a link to one:
thank you, very interesting articles & £5K does not really sound high to me for this Surgery at all I had thought it would have been much higher but good to know he has a new Private Clinic there in London, I recall this Doctor now I read about him some time back I regret not going to him now
So I just had 2nd surgery with Mr Hughes. Total bill for hospital one night stay, surgeon & anesthetist fee was £6078. Most of that is due to Cleveland Clinic hospital charges (over £3.4K). He is a very good surgeon and a pleasant doctor to deal with. Good luck. D
@PatientD - Speaking of which, how did your surgery go, & how are you feeling? You jumped back in here pretty quickly after surgery so it’s easy to assume all is well. Please let us know if you need some moral support or encouragement! You’ve been so helpful to many on our forum. Now it’s your turn if you want/need it.
Thanks :). I am doing much better than I expected at this early post op stage. All the tips from this site have helped my recovery so far. After 6 ops this year & many false dawns am hoping for the best. Next step is to hear what Mr Hughes has to say post op. Hoping his Secretary may give me some info on that tmrw. Post op swelling ok so far but aware the worst May yet come. Feeling cautiously hopeful. D
Good so far, you’re in my prayers
Thanks swelling a bit worse now but that’s to be expected in first week post op and is nowhere near as bad as after right side op. head pressures are struggling again due to JV compression & fluid, bit like being on an aeroplane that is constantly changing altitude, but I know that should settle down too. got my op report today from Mr Hughes office and it seems like things went ok but still await his confirming if styloid was cut to skull base. am starting lymph work on Thursday which should help manage/settle fluid problems faster for me. oxygen concentrator has played up last 2 nights post op, not great timing just post op, but working to find solution. Its clear that swelling in neck/head is root cause of my desats now-its not sleep or central apnea like medics suggest/think it is. anyway all things considered its going ok at this early stage of recovery.
I’m sorry you’re struggling w/ low oxygen the last couple of nights. I hope the lymph drainage makes a big difference & helps significantly reduce the swelling/fluid in your neck/throat.
I think it’s also worth mentioning I got fobbed off by Dr Obholzer
This is so good to hear! Wishing you even more improvements and an easy recovery!
I’m sorry Dr. O is developing a reputation of uselessness for our UK members. We need more doctors who are helpful, not less!
I can endorse that Mr Hughes us a expert and helpful resource for uK members. D