Was it difficult to get diagnosed?

I’m so sorry that he’s making you jump through all these hoops before even considering surgery- in a way it’s a blessing as I think given it sounds like you have vascular ES he probably isn’t the right doctor for you… I know we discussed earlier about getting more imaging and your PCP wouldn’t refer you, but perhaps you could see her again and take some research papers to show her? Or is it possible to change your PCP?

I don’t know if some of the other doctors would consider you as a patient without scans, or whether any would request these for you… I wonder if it would be worth getting in contact with Dr Osborne’s office, he seems to be more open to helping patients based on your symptoms, like is mentioned by @Deanm in this discussion:

1 mo post op-Osborne - General - Living with Eagle

Hoping others might have some helpful suggestions for you, sending you a hug :hugs:

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