Hi Nick (@VCKid1982)!
Welcome to Living with Eagle Syndrome, we’re so happy you’ve connected with our community 
I’m sorry to hear you’ve been living with severe pain, I hope you’ll be able to at least receive a diagnosis soon and maybe get some answers! It must be frustrating, and even though you’re not diagnosed yet, we’re glad you reached out If you’re looking for a specific topic (such as others with similar symptoms as you), I recommend using the search icon (the magnifying glass icon on the top right corner of the green bar).
Hope this helps and please let us know if you have any questions,
-Megan