I’m so sorry that you & your family are going through this, & have been sent away by a doctor- the original list was compiled some time ag, I’m not sure which member saw him, but he would’ve done a successful surgery at some time. Unfortunately many doctors are unaware of a lot of the symptoms, especially the more unusual ones. A lot of members travel a long way for treatment, which would obviously be difficult for you. I don’t know much about the other Florida doctors on the list, but maybe you could message emma, she did the original list & lives in Florida, so knows the doctors there better than me. She has just had a revision surgery in Louisiana, so may take a while to get back to you; here’s a link to the discussion she posted, if you click on her icon the option to message comes up: Dr. Daniel Nuss , Baton Rouge La, Skull Base
The only other thing I can suggest is that you look through the info on the Newbies Guide section, & print off any research papers which help your case, like the symptoms you have, or angle of the styloids being important etc., & take them with you to your primary care doctor to show them that there are published research articles, doctors who do now about ES & believe it! There are articles about people who’ve had vascular ES & passed out & even had strokes- I don’t want to scare you, but maybe it might make your doctor take it more seriously. It sounds like you’ve had a lot of scans etc., but a CT with contrast would show any vascular compression caused by the styloids.
As for doctors, Skull Base/ otolaryngologist doctors are used to operating in the area of the styloid processes, so it might be worth trying to get a referral to someone in your area, rather than ENT if none of the other Florida docs look promising.
I can understand how tough it is to keep having to fight, but you sound really strong & your children need you healthy & to try to fight for them too. I really feel for you, & hope that you can get some help soon. God Bless… 
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