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Hi again, Can any of you tell me if your symptoms are worse on the opposite side that the doctor plans to operate first? My surgery is for Right styloid and jugular decompression yet my left side is way more painful. Anyone else?
That’s weird bc I was diagnosed on my left side but no diagnosis on the rt. Concerned about not getting both of them cared for
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Hi @Sunshinegal,
I somehow missed your question when you posted it. I assume you’ve had your first surgery by now. I was totally in your boat before my first surgery. My left styloid was “killing” me, but my right side symptoms seemed somewhat insignificant. My right styloid was shorter, but it was thicker & growing more straight down do my surgeon said it had to go first. I begged him to do the left first up until I was put under for the surgery. In the end, it did turn out I had some pretty nasty symptoms being caused by the right side. Would have never known it until the left was gone though.
I hope you’re healed & getting on with your life although w/ bilateral ES, both styloids often need to be removed for the best results. Please update us as to how you’re doing.
@Kbrowning11 - Keep pushing for a CT scan of your neck from skull base to hyoid bone w/ emphasis on looking at the styloids & stylohyoid ligaments. That will be the best way for you to know if your ES is bilateral.
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I had my first surgery in 2021 on the right side through my mouth. Again in 2023 to then continue to have extreme pain on the right side and then later, the left side begin to be extremely painful, I went to my surgeon and he determined that it was Best to do the surgery on both sides. I talk to him at length about the fact that I knew the left side was going to get progressively worse and he did both sides at the same time. He did the second surgery on my right side and then the surgery on my left side on the same day and I spent one night in the hospital. I had tubes in my neck for drainage for one week and it’s been about 6 1/2 weeks and I’m doing ok, still recuperating, but a huge difference. would advise you to tell him that you would like to have both sides operated on, unless you feel a medication might help with symptoms, but we all know that sometimes that’s not effective. I would advocate for yourself and ask about having both sides done at the same time. Please let us know what happens.I care! Good luck.
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I just noticed that your post was from 2022. I apologize. I hope you were able to get results, please let us know how you are doing.
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