Hi, very sorry for health difficulties you are facing.
Had a few thoughts to add in case they help:-
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In UK Moorfields Eye Hospital London have an Electrophysiology Dept that can run tests (about 3 hours) to test if connection between brain and eyes is working properly. I mention this in case a similar expertise exists in Belgium or in case London is viable treatment Center for you from Belgium.
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I found Mr Jake Timothy in leeds is better than most UK neurosurgeons at examining scans & identifying problems. He does offer remote consults but only works privately now.
He identified my CCI and JV compressions & carried out C1 trims & spinal fusion. -
If you have not had a Venogram inside brain performed yet this may be worth considering as it could help to identify problems with pressures/compression or other issues. National Neuro Hospital at Queens Sq London (part of UCLH) can perform these at reasonable cost but sadly their radiology reports often lack any detail as they report “by exception”. They do have private patient ward & I have seen overseas patients visiting there.
I hope you find some help soon. I think trying Plavix, Low dose Aspirin or blood thinning drugs are worth you trying while you seek a solution.
Take care. D