Recently, I saw a post on someone asking about Docs in the Mpls. area, and I found one (Dr. Eric Beckon). Now it appears a member w/in their team also deals w/this. Dr. Gendron (female). https://www.mwent.net/meet-the-team/
Have you met with either of these docs?
I met w/Dr. Ondrey (sp.) on Tuesday. I think you saw him, too. He really couldn't do anything for me. He felt where there should/would be pain down in the throat area, and because I don't have that, he feels I should go see another.. so I will.
Christian22 said:
Have you met with either of these docs?
Hello Winterinmn!
I'm in Minnesota too. Thanks for posting this. Do you know if any of the Midwest ENT providers do styloidectomy?
First I had seen Dr. Becken, and I know he does, but he also mentioned about taking out the tonsils, too.
I will see the female Doc in March. Are you near that area? Have you seen any in MN?
Winterinmn:
I see Dr. Becken tomorrow. Thanks to your posts, I had some idea of where to start. :-)
It's hard to hope for much since I've been followed so many false diagnoses over the last year. I'm sure you can relate.
When you say the female doc, do you mean Gendron? Regardless, it should be interesting for you to hear what the second doctor tells you. Although I'm sure you could use less "interesting" news these days.
I'd like to hear what Dr. Becken has to say. Yes on Dr. Gendron.
My "jaw" specialist (in St. Paul), whom I have been seeing for over four yrs. talked about Gendron saying they had just finished having a business luncheon together.
Winterinmn:
Dr. Becken said I have ES. It was pretty obvious. He showed me the styloids on a CT scan (previously done). Plus it's jutting into my mouth. He recommended internal styloidectomy.
Is your jaw specialist helping you with ES symptoms? Or is this a different issue? That s/he had a positive valuation of Gendron is a good sign. Hopefully your appointment with her will be productive. Do you have bilateral ES? Are the styloids palpable in your mouth?
I have dealt w/tmjd for yrs. now, and Dr. Hakala says we're now dealing with a muscle problem. The 'jaw area' muscle stays so tight and nothing seems to help.. only when he does his manual facial therapy that that seems to loosen things up, but it doesn't last. I finally convinced him it was time to do new x-rays as it had been four yrs. He saw it immediately and advised me to see the people that they know and respect their work. He mentioned Dr. Becken. So I met w/Dr. Becken, but that was before I'd had the ct scan (soft tissue) of the neck. The Findings: There are elongated styloid processes vs. partial calcification of the stylohyoid ligaments bilaterally. On the right, this measures up to 4.1 cm in length. On the left, this measures up to 3.6 cm. Tip of the styloid process is approx. 1 cm from the lateral wall of the right side of the or oropharynx. The tip of the left styloid process is approx. 1.6 cm from the lateral wall of the left side of the oropharynx.
more on my sinuses.. then - Impression: There are elongated styloid processes as described above. Most commonly this is an incidental finding. In symptomatic patients (as a result in compression of the cranial nerves or carotid arteries), this is referred to as Eagle syndrome.
I forgot to mention that Dr. H/jaw thinks now that this finding is what might be keeping the muscle so tight.
I think it is getting worse as now when I even turn my head, there can be a sharp pain that I never noted before.
Please keep updating.
Winterinmn said:
I have dealt w/tmjd for yrs. now, and Dr. Hakala says we're now dealing with a muscle problem. The 'jaw area' muscle stays so tight and nothing seems to help.. only when he does his manual facial therapy that that seems to loosen things up, but it doesn't last. I finally convinced him it was time to do new x-rays as it had been four yrs. He saw it immediately and advised me to see the people that they know and respect their work. He mentioned Dr. Becken. So I met w/Dr. Becken, but that was before I'd had the ct scan (soft tissue) of the neck. The Findings: There are elongated styloid processes vs. partial calcification of the stylohyoid ligaments bilaterally. On the right, this measures up to 4.1 cm in length. On the left, this measures up to 3.6 cm. Tip of the styloid process is approx. 1 cm from the lateral wall of the right side of the or oropharynx. The tip of the left styloid process is approx. 1.6 cm from the lateral wall of the left side of the oropharynx.
more on my sinuses.. then - Impression: There are elongated styloid processes as described above. Most commonly this is an incidental finding. In symptomatic patients (as a result in compression of the cranial nerves or carotid arteries), this is referred to as Eagle syndrome.
I forgot to mention that Dr. H/jaw thinks now that this finding is what might be keeping the muscle so tight.
I think it is getting worse as now when I even turn my head, there can be a sharp pain that I never noted before.
Please keep updating.
Forgot to ask. Did Dr. Becken say why do the in vs. the ex method?
Winter:
So Dr. H uses his hands to massage or manipulate your jaw area? It does seem that "massaging" inside my throat seemed to help, but the relief is very temporary. And of course I'm not a trained in that business.
Thank goodness you asked for an x-ray! And that yr doc identified it immediately. If it's extending to your pharyx that's a fairly oblique angle. Have you had voice trouble?
>>There are elongated styloid processes vs. partial calcification of the stylohyoid ligaments bilaterally
This distinction is news to me. Many CT and X-ray images of ES show a variation of either a continuous process OR what looks like segmented bits. I am wondering if this this the calcification of the ligament you mentioned????
Dr. B said the recovery time is fast with internal. For me, it probably makes sense since the tip of the styloid is in my mouth. It's probably a different story for someone with no palpable styloid.
Dr. H. actually has to go into my mouth w/his thumbs and fingers and stretch, push down on the bottom teeth and jaw and gently stretch, then he will rotate the entire jaw area. I don't fully understand what that one sentence means Dr. H. had mentioned calcification and also that he'd never seen any so wide. I see him at 2pm today and will ask a few more q's.
I saw Dr. Ondrey recently at the U of M but because he couldn't feel inside the regular symptoms one has, he said he couldn't really help me. He was going to have the hospital's leading radiologist look over my ct. Am still waiting to hear from them.
How did your visit with Dr. H turn out? Are you getting any relief? Any new insights?
What I meant to type regarding calcification is this: I've notice that CT and x-ray images of ES show variation of either one long styloid OR what looks like segments between the styloid and hyoid. Are the images of segments due to calcification of the ligament? (Hmm, hope that makes sense.)
Winterinmn said:
Dr. H. actually has to go into my mouth w/his thumbs and fingers and stretch, push down on the bottom teeth and jaw and gently stretch, then he will rotate the entire jaw area. I don't fully understand what that one sentence means Dr. H. had mentioned calcification and also that he'd never seen any so wide. I see him at 2pm today and will ask a few more q's.
I saw Dr. Ondrey recently at the U of M but because he couldn't feel inside the regular symptoms one has, he said he couldn't really help me. He was going to have the hospital's leading radiologist look over my ct. Am still waiting to hear from them.
Thanks for asking. It kind of went as just my regular old visit. Our next step will be to see Dr. Gendron on March 10th.
There is a MN Oral facial something just a few blocks from me, and tomorrow (they're only here limited days) I am bringing over my ct copy/disk and the report and see if they do anything w/this.
minnesota said:
How did your visit with Dr. H turn out? Are you getting any relief? Any new insights?
What I meant to type regarding calcification is this: I've notice that CT and x-ray images of ES show variation of either one long styloid OR what looks like segments between the styloid and hyoid. Are the images of segments due to calcification of the ligament? (Hmm, hope that makes sense.)
Winterinmn said:Dr. H. actually has to go into my mouth w/his thumbs and fingers and stretch, push down on the bottom teeth and jaw and gently stretch, then he will rotate the entire jaw area. I don't fully understand what that one sentence means Dr. H. had mentioned calcification and also that he'd never seen any so wide. I see him at 2pm today and will ask a few more q's.
I saw Dr. Ondrey recently at the U of M but because he couldn't feel inside the regular symptoms one has, he said he couldn't really help me. He was going to have the hospital's leading radiologist look over my ct. Am still waiting to hear from them.
Hello fellow Minnesotans,
I am looking for the best place to start as I suspect I may have ES. My primary care dr has referred me to Mayo, however if that is not the best place for this particular syndrome, I'd rather go elsewhere. I see some doctors mentioned back in Feb. of 2015. Just wondering if any of you would care to share your outcome and how you have been doing in the past year?
Thanks!
Minnesoh-tan said:
Hello fellow Minnesotans,
I am looking for the best place to start as I suspect I may have ES. My primary care dr has referred me to Mayo, however if that is not the best place for this particular syndrome, I'd rather go elsewhere. I see some doctors mentioned back in Feb. of 2015. Just wondering if any of you would care to share your outcome and how you have been doing in the past year?
Thanks!
Have you found anyone yet in the cities area?
I saw Dr. Wm. Garvis, and he did both sides intraorally. (sp.)
He does it that way because he said you risk damaging a facial nerve and why take that risk?
He does his surgeries at Abbott. I was very happy with his work - no complaints.. I did have an issue that happened with the 2nd one but am dealing with it.
All in all, I felt he did great.
http://www.entsc.com/physicians.cfm/pid:417/William_Garvis/index.html
Winterinmn said:
Minnesoh-tan said:Hello fellow Minnesotans,
I am looking for the best place to start as I suspect I may have ES. My primary care dr has referred me to Mayo, however if that is not the best place for this particular syndrome, I'd rather go elsewhere. I see some doctors mentioned back in Feb. of 2015. Just wondering if any of you would care to share your outcome and how you have been doing in the past year?
Thanks!
Thank you Winterinmn. That is the third time I have heard of that doctor today- so I believe I will seek him out. Did you have trouble w your palate after your surgeries? That is my main concern w intra-oral approaches. I am a Speech-language pathologist so I have a little bit more worrisome knowledge in this area. Job hazard I guess. Thanks again for your response. I appreciate it greatly!
Winterinmn said:
Have you found anyone yet in the cities area?
I saw Dr. Wm. Garvis, and he did both sides intraorally. (sp.)
He does it that way because he said you risk damaging a facial nerve and why take that risk?
He does his surgeries at Abbott. I was very happy with his work - no complaints… I did have an issue that happened with the 2nd one but am dealing with it.
All in all, I felt he did great.
http://www.entsc.com/physicians.cfm/pid:417/William_Garvis/index.html
Winterinmn said:
Minnesoh-tan said:Hello fellow Minnesotans,
I am looking for the best place to start as I suspect I may have ES. My primary care dr has referred me to Mayo, however if that is not the best place for this particular syndrome, I’d rather go elsewhere. I see some doctors mentioned back in Feb. of 2015. Just wondering if any of you would care to share your outcome and how you have been doing in the past year?
Thanks!
Winterinmn said:
Have you found anyone yet in the cities area?
I saw Dr. Wm. Garvis, and he did both sides intraorally. (sp.)
He does it that way because he said you risk damaging a facial nerve and why take that risk?
He does his surgeries at Abbott. I was very happy with his work - no complaints.. I did have an issue that happened with the 2nd one but am dealing with it.
All in all, I felt he did great.
http://www.entsc.com/physicians.cfm/pid:417/William_Garvis/index.html
Winterinmn said:
Minnesoh-tan said:Hello fellow Minnesotans,
I am looking for the best place to start as I suspect I may have ES. My primary care dr has referred me to Mayo, however if that is not the best place for this particular syndrome, I'd rather go elsewhere. I see some doctors mentioned back in Feb. of 2015. Just wondering if any of you would care to share your outcome and how you have been doing in the past year?
Thanks!