Anyone think there’s anything to what my pcp says experienced similar sensation

Good Morning Eaglers (EST)

Both fingers on each of my hands tingle. I also am currently experiencing a sensation in my left leg. My pcp says carpal tunnel. Considering I have Eagle. Does anyone have thoughts whether I should wear left and right wrists splints 24/7?

I appreciate you alls attention to this matter,

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Some members have had tingling in the arms from the accessory nerve being compressed, I did have tingling in my fingers from a prolapsed disc C5-C6 which improved with limiting time peering at the laptop & with physio…If your PCP thinks it’s carpal tunnel then it’s worth trying the splints to see if there’s an improvement. I don’t know about how long to wear them for though, I’d read up online about that or ask your PCP, 24/7 sounds alot to me, from what I’ve read it seems to be recommended to just wear them at night…

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Big +1 for this comment, even if it’s to rule in or out.
I had a lot of medical opinions of "it could be ‘X’ or it could be ‘Y’, but nothing definitive. I had to go through a process of elimination of treatments/theories to rule out each one. Tingles is one of my ongoing issues, but trying to find an answer has been near on impossible for me. But, if you find the splints assist you, then, in my humble opinion, you’d be mad not to try them.

Now, I must also agree with @Jules in regard to the ‘24/7’ use of splints and seeking medical advice in regard to this, as I know some people can have major issues having no movement in joints for an extended period. Please speak to your treating Dr.

Merl from the Modsupport Team

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@Itsanewdawn - you can also try raising your computer screen so it’s at eye level & holding your phone at eye level when texting, reading or watching things on it as that puts your neck in a healthier position where the styloids are less likely to be pressing on some of the nerves. Looking down all day is hard on the neck, shoulder & upper back. Just doing those two things may also help relieve your symptoms somewhat. As Jules mentioned, the wrist splints could help too, but wearing them all day may be too much.

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Good Morning Jules (I’m in EST),

I appreciate your openness with your C’s. I pray for your comfort if you still experience the tingling. I also appreciate the feedback re. the length of wear.

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Good Morning Merl, (I’m in EST)

I appreciate your openness about your tingling. My prayers doctors’ll be able to land on a cause for you. I appreciate your advice on my length of wear.

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Good Morning Isaiah, (I’m in EST)

I appreciate the advice. I also appreciate the advice on my length of wear!

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Hey @Itsanewdawn
I think the problem with tingling is that it’s often seen as too non-descript for a clear diagnosis and often simply labelled as ‘nerve pain’. My primary issue is neurological, but the flow-on effects from that have been many, too many. And includes the tingles. Trying to find an answer… …ohh that has been a minefield. Every Dr has had a differing view and a differing opinion with differing treatment options. This was where I went “…through a process of elimination of treatments/theories to rule out each one”.

A few months ago I was given a recommendation to have another neurosurgery, this would be my 7th brain surgery. My recoveries from the others were NOT nice, each being progressively worse than the last. The best the medicos could come up with was “…well, it might help…” MIGHT?? And I’m not prepared to take that risk for a ‘might’. Presently, it’s not life threatening and when it is I’ll reassess from there.

Now, That is MY choice and what I feel is best for me. Could things be better? Yes. But then could things be worse? And again the answer is Yes, so I try to manage where I’m at rather than risking going backwards even further.

Merl from the Modsupport Team

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Merl I hope that things settle for you & you don’t need another surgery, it sounds like a wise decision, & we appreciate the help you give us here when you’re dealing with symptoms still yourself :hugs:

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I agree with @Jules, Merl. Thank you for sharing wisdom based on your extensive surgical experience. Though you don’t have ES yourself, you have symptoms which align with what some of our members suffer so we appreciate how you can relate to those living with Eagle Syndrome. :gift_heart:

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Thanks @Jules , @Isaiah_40_31

As with many rare conditions, trying to find a clear answer is a bit like trying to nail jello to the wall. Near on impossible, with lots of “…it could be ‘X’ or it could be ‘Y’…”. Being neurological (Head/Neck), early on in my journey Eagles was identified as one of those ‘could be’s’ but was quickly ruled out with a scan. Personally, I think if they can take a scan and see an issue, it’s a straight line to a diagnosis. The problem often arises when scans are clear but the issue/s are still present and unfortunately this is common for many rare conditions.

Some medicos also like the 'We operated. We fixed" theory, if there’s an ongoing issue then it must an issue with the patient “it’s nothing I’ve done, it must just be YOU” and often that makes us question ourselves. I cannot tell you how many ‘PHEW, so it’s not just ME…’ type moments I’ve had on these communities. Just in letting others know they are not alone on this journey can be such a relief. It was for me.

Merl from the Modsupport Team

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I agree wholeheartedly Merl about the PHEW & not just me, and w. Isaiah and Jules giving you your well-deserved “flowers” Merl!

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