Hello Scott,
I was unable to find out from the link whether this service is only for U.S residents or if it will link international records. Can you clarify this please?
Red Pill
I think US only for now. But try it out. Feel free to email them. They are nice people.
Hi Scott,
I was wondering what your thoughts are on the safety and privacy of using this site. It does seem like an excellent service, but I worry about possible problems if this site gets hacked and my info gets out. I'm not really sure what the risks could be, but that only makes me worry more.
Thanks!
Great question Eagleheart. Any website is susceptible to hacking, but we do have the benefit of running on a pretty hefty software platform called Ning which spends a lot of time and money on security.
I would suggest never posting anything that you wouldn't be comfortable with being public. That's how I operate online, on every site.
I'm sorry, Scott. I didn't make myself clear. I was wondering what you thought about the security of using PicnicHealth. Thank you for getting back to me. Also, thank you for the great work you do to help people with rare diseases.
Thanks for the kind words!!!
I don't have a good sense for Picnic's security. Most startups know to use security methods and keep things safe, but it's always risky.