I would love some help, I have had two ENT dr's suggest Eagle Syndrome (or TMJ) to me but I have not been officially diagnosed, I think because some things don't seem to fit the bill. I'd love to know if there is a particular scan or xray I should be requesting that would show the problem. Here's what I've had so far, along with symptoms, will try to keep it short but it's been such a long and scary ordeal too!
About eight months ago, feeling of lump in throat, would feel better when I ate or drank though. Pain in lots of different areas started, predominately on right side (left side started soon after), and mostly just under the ear lobe about an inch down. Other pain (and I describe the pain as more of an on and off, radiating pain, that almost feels like an infection kind of pain), in different areas of the right side of my neck, under both sides of my chin, in the front of my throat area, just under my ear, inside my ear (feels like deep pain inside, again, like an infection), and a weird radiating pain on the lower portion of my cheek, just above my jaw bone, right side. I can't quite locate where the pain is even coming from half the time, but it's all there. Often pain in a weird area back in the throat (again, can't exactly pinpoint where). the pain is every day, somedays worse than others, and no specific time to when it gets worse or better, although I never seem to have much pain in the morning or at bedtime.
Here's what I've had done so far:
Two rounds of antibiotics as per ENT, neither helped. On Aleve, was told it would reduce inflammation, didn't help. Had a CT scan to look at swollen lymph nodes (felt a palpable node on right side, this is when it began to get scary), CT showed nothing. But I do not know if they were looking for Eagle, I think it was more focused on the lymph node. MRI of neck and head, a different ENT looked at it and said there was no elongation, so cannot be Eagle. Had biopsy of lymph node (negative, amen). Had full set of dental xrays, showed nothing. Went to oral surgeon, he mentioned Eagle, but first ENT said no elongation, so no Eagle.
I would LOVE anybody's thoughts. The last eight months have been terribly stressful for me, and I'm just feeling so stuck, not knowing where to turn next or what tests to ask for. The pain, as it stands, is bearable, but I would like to be able to put my finger on something, so that my mind could rest a bit on this, and I could work in some sort of direction. I'd love to know if these symptoms sound correct - I had heard that Eagle Syndrome is almost always just one one side, but I feel pain on the other side too.... and what kind of test you would ask your doctor for. Finally, I live in NJ so any recommendation to a doctor in the know would be so helpful, can't seem to find anything online in NY or NJ at all.
Blessings, thank you all!!!!