@anon67578920 what a battle this has been for you. I have experienced some similar symptoms and I am glad that you have not given up. Your body is talking to you and you know things are not right. I hope you can find some relief soon.
I have recently been reading a book on Idiopathic Intercrainial hypertension by Kyle Farrgen
Maybe another good resource for you
@TheDude has posted another good link regarding venous outflow disturbance
I do hope you can connect with a doctor that’s willing to work with you to figure out the best solution for your symptoms.
Stay strong my friend
Wishing you the very best today and a pain free tomorrow