I was 14-15 years old, they gave me age-related and psychological diagnoses. As a result, after almost 20 years, I began to study aspects of medicine, the structure of the vascular system, pictures, and figured it out on my own.And I even independently found compression of the IJV in another patient. But he has a straight bone, eagle syndrome. I have segmental calcification and to see it on CT I need to change the spectral range. but for me this is not the main reason. This year I already had my own opinion about the presence of compression of the IJV, our doctors believe that there can be no problems with the veins and do not even examine it. Yes, and ultrasound specialists do not know how to make mistakes in the angle, false compression of the vertebral arteries in TOS syndrome, Kimmerle. And they don’t know the basics of hydrodynamics, but I noticed that ultrasound doctors have a problem with this abroad too)))) In total, this year I visited 7 surgeons, vascular and neuro. As a result, the first two did not see IJV compression on CT scans. The third one was tired (they are all tired and grumpy, it’s hard to talk to them))))) and the conversation did not reach the compression of the IJV, but only supposedly hypoplasia of the transverse sinus and sigmoid sinus, they say it’s congenital in you, get out of here, but in the end this hypoplasia is due to blood flow The fourth vascular surgeon from the Filatov hospital saw compression on bad images, but said that there was no such practice in Russia, go to the institutes. Further to Burdenko neurosurgeon,questioned the compression of the IJV and sent him for an ultrasound and it was his mistake. There was no such practice in Burdenko either. Then, at the Sklifosovsky hospital, a neurosurgeon confirmed compression of the IJV and prescribed surgery. They also did not have such practice. But two months have already passed and there is still no decision from the council of doctors and I have not yet had the operation. I have no money, I can’t work, I start to choke, hyperventilate if I work mentally and motionless at the computer. I can’t argue, he’s getting acquainted, he’s so half asleep. I don’t know what to do next. 20 years and now I’ve found the reason and it’s still useless.
I still understood a lot. For example, during an operation on TOS, the external jugular veins are dissected, and the scalene muscles are dissected and the load increases on the deep muscles of the neck and thereby increases in volume, hypertrophy and compresses the vessels, namely the vertebral plexus of veins. And a person with venous insufficiency will get worse after TOS surgery. TOS and transverse processes of the atlas are comorbidities. Both due to heaviness,from lifting weights. I think that kimmerle calcification is also caused by from lifting weights. For example, in Thailand or Malaysia, kimmerle is found in almost 50-60% of the population versus 30% in other countries. And what is there - hard work from an early age. If you look at the edge of the transverse process of the atlas, the levator scapulae is pulled down at an early age when bones grow. And yes, there is also such a thing as subluxation of the atlas, but this is easy to detect on CT and xRAy. And the pain will be on that hemisphere of the head. In this case, gerotraction, a hard collar or surgery are practically impossible to correct. Only immediately after the accident.There is also a displacement of the atlas relative to the skull by 2 mm and will compress the IJV. But this is the tip of the iceberg, not the main problem, and you will get some relief if you move it a little. The main thing is the large transverse processes of the atlas. This can be seen on CT scan.
***strong text It’s hard to concentrate while driving, so I don’t drive the car. You get lost in the crowd, at night, when it’s noisy. Something like a phobia, but the brain simply does not have time to process information due to lack of oxygen, less blood flow. With venous insufficiency and compression of two IJVs, volumetric blood flow decreases by 20-40% of the total volume, and also intracranial pressure. Symptoms:
Main: Tinnitus, nasal congestion, eye floaters. During the physical activity and lifting weight the tinnitus gets worse, the limbs and lips feel numb. During prolonged sitting (like working at the
desk) - shortness of breath. constant whistling/ringing in the ears, which increases with the tone of
the neck muscles
(immobility for more than 40 minutes, heaviness), with it, nasal congestion and a feeling
of intracranial pressure increases, can lay ears during physical exertion, numb hands, lips -
after exertion, suffocate often, nasal congestion, midges in the eyes, a condition like after
a blow to the head,fatigue, absent-mindedness, a little slowness, limited
head rotation, you wake up in the morning as if you were being strangled, there is a grid in your
eyes, like with a hangover(alcohol is extremely difficult to tolerate from 1 liter of beer,
I rarely drink alcohol), I drink a lot of water. In general, in order to feel more or less, I need to
move,even in pairs or at work, I tried to stretch my neck and shoulders every hour, because
intracranial pressure, nasal congestion, whistling and a feeling of lack of breath gradually increased,
I began to breathe hard, everyone pays attention to it. Or I wear
a bag of 15-20 kg, and then I will feel bad, nasal congestion will increase, whistling.
After heavy ones, I will generally suffocate there and sometimes it is easy
dizziness, the whistling-ringing always increases, and in parallel with this intracranial
pressure and stuffs the nose. Also, when strong neck muscle tone and hyperventilation
lie on my stomach, face down - it helps.
With little physical activity :During push-ups, pull-ups, the feeling
of intracranial pressure, nasal congestion, whistling (ringing) increases, blurring, numbness behind
the ears, lips, hands, lack of air, hyperventilation and then fear may occur.When pulling
up , there is a darkening in the eyes, a pre-fainting state in waves to the beat of the heartbeat with
increased whistling (ringing), midges, nasal congestion, after 1-2 minutes numbness of the lips and
hands,
spots- turbidity in the center appear almost always, if the numbness is stronger then
the spots are green and suffocation is stronger. Therefore, I don’t do a lot of 2-3 sets of 10 push-ups
and
2-3 sets of 4-5 pull-ups, if I feel numb and feel unwell, then I do
less. And if I enter this state, then I get out of it by warming up my shoulders, neck and
walking. While running, the nose lays yes, but I feel good, but after running after
5-7 minutes, it’s also bad. I run a little 1000-1400 meters
Here are some more important symptoms: At night you fall asleep on your back, you wake up from
feeling unwell, lack of air, ripples in your eyes, there is a slight dizziness that
passes 20 seconds after movement, feeling unwell - 2 minutes later. And so
you spin around every 30-120 minutes, you can’t find a comfortable position for your head.In the
morning
, there is a broken mesh in the eyes. There is tension on the back of the neck and the nose begins
to lay, the whistle increases, as if the intracranial pressure rises. Lying on
your back, the neck muscles are reflexively tense to facilitate oral breathing (presses on
the larynx).
And as I do not have to work I can not, physical labor becomes bad choke. Mental work sitting at
the computer, podrobnee after 2-3 hours pray pray computer, everyone pay attention . On the way to
an appointment, if it lasts an hour or more, intracranial pressure gradually increases
and I start to breathe hard, and at the end they notice everything, I go out to warm up for a few
minutes and it calms down a little and I come back.
Background. The beginning of symptoms . In the period from 14 to 17-19 years: From the
age of 14, a weak
whistle that sometimes intensified, the head ached terribly for a couple of months, the left
hemisphere was just where the venous sinus was (there was a pulsation where the fontanel was),
sometimes
accompanied by nausea and, accordingly, a feeling of bursting-pressure in the head —
intracranial pressure, there was dizziness when changing positions, jumping pulse and
pressure, there was tachycardia and bragicardia I don’t remember 45-49 beats /min. In addition,
there were
abundant nasal hemorrhages with normal blowing of the nose, with a frequency of 1-2 times a day
a week ,-lasted up to 18-19 years .Constantly cold hands , irritability, even then
there were some problems with nasal breathing.Pain in the spine from heavy loads, ringing
(whistling) and fatigue appeared in the period from 13 to 14 years, stiffness when turning the head,
whistling (ringing) in the ears and fatigue. I felt pain in the thoracic spine
stiffness and heaviness when inhaling. At the age of 15, I was hanging upside down on a pipe,
something cracked in
my neck and, as it were, liquid flowed into my throat, darkened in my eyes and dizzy (I managed to
get off) and fell to the ground. After this situation, for about two months I had a weak
pulse reaching 50 beats (during the day), tachycardia and, accordingly, after that, strong
fear, dizziness and a feeling of a coma in my throat. After 17-19 years, nosebleeds
gradually stopped, dizziness became less frequent, tachycardia disappeared. Injuries: In
childhood, 6-8 years old, I fell from an attic and a tree: from a height of 2.5 m. on my side, at the
age of 13 they jumped from
a second-floor window -then I pulled my neck (whiplash injury) I was sick for two weeks. From 13
to 16 years old
heavy physical labor (40kg bags dragged), incorrect “swing” of muscles and breathing (max up to
100 push-ups , 50 on the uneven bars, 30 pull-ups, 400 times a 14 kg rotor on the biceps and all
this with sharp movements without breath control) , pain in the spine. At the age of 17, I rolled an
85
kg barbell over my chest and stomach, felt bad for about two weeks.A couple of years
ago, a radiologist after fluorography said that two ribs were broken, possibly
the consequences after the barbell.
Treatment: Doctors diagnosed intracranial pressure and VSD. In the period from 14 to 17 years
treatment was prescribed-droppers, magnesium B6, cinnarizine, piracetam, bilobil, massage,
electrophoresis and chiropractic.They did an MRI of the brain , no abnormalities were
found .Chiropractic - the cervical vertebrae were set twice, after these
procedures I felt very bad — weak pulse and fear of sweating , etc. The duration
of treatment is 3-4 weeks, but the effect of drug treatment is almost zero
(massage and electrophoresis brought insignificant relief). The headache went
away on its own after a couple of months . Since the age of 17, I have been doing significantly less
physical exercises (sometimes push-ups, pull-ups) at 21 during exercise
, I felt numbness in my hands for the first time, and from the age of 23-24 I led a sedentary lifestyle.
But at
this age up to 22 years, physical exertion , running-were well tolerated and the nose
was practically breathing, there was ringing, fatigue, headaches . In the period from the age of 23,
he began to feel
significant nasal congestion, and tinnitus and fatigue began to progress.
At the age of 24, he performed an operation on the nose – the bridge of the nose was leveled, laser
vasatomy of the nasal
shells and the lower passages were expanded (the bone was broken). The operation had no effect .
Around 2012, I somehow adapted to sleeping for a month on my stomach face down for 2-3 hours
and the neck muscles were relaxed, after that I felt cheerful for a week,
nasal congestion and whistling in the ears disappeared (then I put a small pillow under
the chest, one hand under the forehead, and the fingers of the second hand spread out under the
mouth for
breathing is not very convenient of course). I stopped sleeping on my stomach and doing exercises
–everything
came back in a week .
At the age of 26, I checked the heart at the FSBI “NMIC of Cardiology”-ultrasound,cardio,trimble
test result the heart is healthy. By the age of 28, the nose was practically not breathing.
Since the age of 25 , they have progressed :whistling, nasal congestion, numbness of the hands and
hyperventilation).***
I doubted the compression of the IJV, there were bad pictures, but then I figured it out and took measurements with a ruler in the CT program, and yes, there is compression of two IJVs. According to the ultrasound, the left IJV is 240 and the right is 350 ml/min, but this is in the 2nd segment, in the 3rd segment less and, again, I doubt that the velocity measurements are correct, but still, MRI venography without contrast also shows a narrowing of the IJV at the site of the transverse process of the atlas. The IJV is compressed in the triangle - the posterior muscle of the digastric muscle, the transverse process of the atlas and the stylohyoid muscle (which is also calcified in parts and to see it in the CT program you need to change the spectral range), on the left IJV is compressed between the hyoid bone - the common carotid artery and the sternocleidomastoid muscle (all muscles are hypertrophied, including the scalene muscles).
The problem is that no one looks at the veins and no one has performed operations on the transverse process of the atlas, on the needle processes. But I think that removing only one stylohyoid muscle will not help or only partially. The main problem is the large transverse processes of the atlas, which are retracted at an early age, when there were soft bones, due to heavy lifting (levator scapulae).
The scalene muscle is there, the vertebral arteries are close to the anterior scalene muscle, the thoracic outlet is small - the first rib is small, but I think they have a greater effect on the chest.
All this is most likely due to the severity of adolescence during the period of bone mass growth.
Another person (Suprun Yaroslav) has similar symptoms, but not constant and not as strong. Although he has a bone spike, the compression of the internal jugular veins is less than mine. Five images are attached. My photos and symptoms in PDF.
There are many problems with color Doppler ultrasound. False, false conclusions (diagnosis) about compression of the vertebral arteries during TOS, Kimmerle. The ultrasound specialist does not see compression above the sensor in the Atlas area (C1) `
It is not visible on ultrasound images, and specialists did not detect compression, but in fact there is compression of the internal jugular veins (IJV). I considered the volume on the right to be 300-320 ml/min, on the left 210-220 ml/min, but there are studies and the norm for the internal jugular veins is from 540 to 920 ml/min, i.e. vary greatly and that the flow rate for a particular person is unknown, and a deficiency of 100-200 ml/min will create pressure in the head. Here is my method how to indirectly estimate the IJV compression in the c1 atlas area (because the sensor will not see anything in this area) /IJV/(VA + CCA) x 100% = %
(assuming that
Some patients with scalene SOS experience symptoms of intracranial
hypertension, which I became acquainted with in one of the foreign articles and my detailed
thoughts) Also theoretically with compression of the subclavian artery
(possibly due to a drop in blood pressure, my reading is usually 105/67 on
hand, but essentially another rash on the hands), excess arterial blood
distributed and enters the brain, further worsens venous
insufficiency and increases intracranial hypertension/intracranial
pressure, after physical the load is stronger because the compression of the subclavian artery is stronger, and the muscles
increase in volume and can put pressure on the veins. Moreover, since scalenus
(thoracic outlet syndrome) is caused primarily by severity and enlargement
in the transverse processes of C1, most likely due to the load on the muscle connecting the scapula
and Atlant C1 at an early age, in the bone growth phase, these diseases
will often accompany each other. Also the reason for frequent complaints about
ineffectiveness of the operation and worsening symptoms after removal of the 1st rib
or scalene muscles or decussation, crossing of veins may be observed during
procedure. Conversely, people who developed scalenus at a later age, with
formed bones that do not have problems with the LES in the Atlant C1 zone and with
less intense symptoms may well have a positive effect
from the operation. Taking into account the possibility of compression of the vertebral arteries of the scalene
muscles, then this is possible, since my VA is close to the scalene muscle and the head of the 1st rib.
But I still doubt it, although the symptoms are whistling/ringing, but maybe
almost due to any disruption of the blood supply to the brain, including venous
failure.
Insurance companies pay significantly less for surgical operations than the market value. Of course, I paid for MRI, CT, ultrasound and some appointments with neurologists. I have spent about $1000-1500 over the past three years. And from 15 years old for that time about $2500. Wouldn’t it be better to spend this money on surgery?Yes, work should be paid, but when you spend money and there is no result, it’s not good. It would be better if I spent some of the money not on neurologists, but on surgeons; there would be more benefits. What is the price of such an operation in your region? So that you understand, salaries in the capital of Russia, Moscow, are the highest. The salary of a power engineer with a higher education is $700-1000 net per month (taxes have already been deducted), an electrician, a plumber is $350-500. Design engineer $700-1000. chief accountant $1000-2000. In regions, regions, villages Electrical engineer $300-400, electrician plumber - $200-350. And in villages (contry) Electrical engineer $160-200, electrician plumber - $100-160
. If it hurts or flares up symptoms during exercise… stop and evaluate the exercise and what you’re doing. And also if it flares up in the hours after exercise.
and a big hug from way across the ocean.
