I can’t really comment on all your questions as I don’t know that much about all your conditions, so can only comment on experience of ES & what other members have found. Do you have Vascular ES, have you had investigations for this?
…if your intracranial hypertension has caused CSF leaks you can then be found to have intracranial hypotension as your leak specialist found. If the hypertension is caused by ES & IJV compression (which is quite common), then this can cause a leak, so if you have a blood patch while you still have compression by the styloids, the patch will likely fail again & you’ll have another leak. Ideally the cause of the intracranial hypertension needs to be treated before trying patches; Dr Hepworth usually removes the styloids to stop the compression, then repairs leaks.
Here’s a link to a discussion you might find helpful:
Possible jugular compression, CSF leak, intercranial hypertension. Advice? - General - Living with Eagle
I hope this helps a bit with some answers, I’m sorry that you have so many difficult medical conditions
And this is the video @vdm posted about the CSF cycle:
Cerebrospinal fluid - function, production and circulation - animation by Dr. Cal Shipley, M.D.
Out of interest, as I don’t know anything about NCS, how is it diagnosed, & how would you be able to know it’s not a syncope from a vagus nerve issue or carotid artery compression from the styloids for example?
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