While the focus of this paper is on the causes of Idiopathic Intracranial Hypertension IIH it identifies causative factors including cerebral vascular obstruction, elongated styloid/C1 impinging the IJV, TOS, HTN…very interesting and relatively new, posted 9/2020
Thanks JustBreathe, I’ll have a look when I get a minute
How are you doing?
This is sooo interesting. The article stresses that anxiety is a very common experience for people with these issues… Also I noticed the article is by Kjetil Larsen who I believe some of the U.K. members have seen and found to be very helpful!
The more info the better! Thank you, JustBreathe. I’m Jules’ camp & will read this ASAP.
Hi Jules, thanks for asking! I am holding my own. Currently I am working on my cervical spine now that it is no longer limited by the styloid attachment to my mandible on both sides, lots of mobility restrictions and weakness. I have dropped into low cranial pressure with the skull base leak. I have an appt this week to make a plan so we will see. Hope you are well
So sorry that you’re still getting the leaks, I hope that you can get some answers- well, preferably solutions! I hope that the mobility & strength will improve round your neck & jaw…
I, too, am very sorry to hear that the CSF leak is still significantly problematic. I hope Dr. Hepworth is able to think “outside the box” to come up with a permanent solution for you. I’m sorry I’ve forgotten, have you been diagnosed w/ EDS or is your instability strictly in your cervical spine? I will be praying your full recovery.
Actually I don’t have any instability but the opposite, rigidity and loss of natural curve in my spine from the lack of motion due to the styloid attachment to the mandible. I do not have EDS, a rarity for sure. But I guess that fits with my rarity of having so many moon size holes in my head My neck is already feeling better and I will have repeat xrays to see if what I am doing is actually changing the curves in my spine or not now that I can tolerate the treatment. Order of operation is imperative…first the styloids and vascular compression, then the musculoskeletal and then the leak…seems to me anyways I am my own Guinea pig experiment! Cheers
Hi Blossom, yes we are working with Kjetil Larsen at the moment, would highly recommend him for opinions on scans
I read on his website he is closing his office to enter medical school in 2021, is that correct?
Hi justbreathe, I understood he is stopping his clinic in Norway but still doing on line consultations, best send a message