@SeekingInfo you’re definitely in a tough position. I will add that ES is typically progressive because calcification continues. So the longer without surgery there is the potential of worsening symptoms. I’ve been bedridden for a year. If I had the surgery a year ago I wouldn’t be bedridden. As the sole bread-winner this is something you need to consider because it could get worse if not addressed. But it’s also possible things will remain the same. Chronic IJV compression though is not good for the brain though, with more research positing that it can increase the risk of neuropsychiatric problems like dementia. Not trying to scare you, but just trying to highlight that ES can be more of an emergency than people think.
Fortunately for you, California is one of the states with the most ES doctors. Most notably Dr. Samji.