I’m on Mac, but if I remember windows there’s a folder/icon called my computer. You may find your cd drive in there
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What does SCDS?
@GodisAWESOME, it’s Superior Canal Dehiscence Syndrome, an issue with the inner ear, a gap in the bone, which causes balance issues, hearing problems etc. Some members have had this diagnosed alongside ES, one of the top UK surgeons believes it can happen when there’s high pressure in the brain & it wears away the bone…
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I have had a lot of imaging performed but this is the first time I’ve heard of SCDS. I might have asked this before but what type of imaging to diagnose SCDS?
Dr. Patsalides diagnosed me with eagles syndrome. My right side is more pronounced than my left.
Thanks, Jules. I have never been told I have that and I don’t have those symptoms I would say so that’s good!
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Wow, I didn’t know that, but it makes perfect sense.
I’ve had some scans done, and they want to do more to see if I have SCDS.
the fun never stops…
Barry
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Pretty interesting styloids, @Bc2! Your’s are “Type 2” - pseudoarticulated. We don’t see those very often on here. You may be interested in this research article, mostly because it shows images of the different types of styloid elongation. Type 4 is stylohyoid calcification only:
SCDS is diagnosed w/ a CT scan. One of our members who was checked for it because she could hear here eyes moving back & forth in her head. Just as w/ ES there are quite a variety of symptoms that can be indicative of SCDS.
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Did Dr. Constantino say how long it takes for the tinnitus to go away, and if the styloids are shortened, why would it remain? Did he say if the surgery is ever 100% successful?
I have had a CT Venous Brain with and w/o Contrast. Is this the same thing as a CTV? My report said, “THERE IS AN ACCESSORY DRAINING VEIN ON THE RIGHT ARISING FROM THE RIGHT JUGULAR VEIN AND EXTENDING ALONG THE RIGHT NECK ALONG THE RIGHT VERTEBRAL ARTERY VISUALIZED POSITION OF THE RIGHT VERTEBRAL ARTERY APPEAR PATENT, HOWEVER THIS IS INCOMPLETELY IMAGED. IF FURTHER CLINICAL CONCERN PERSISTS THIS WOULD BE BETTER EVALUATED WITH CTA OF THE NECK.”
Thanks.
Ok, there’s a few different questions there.
The decompression surgery itself is successful if the compression is removed.
Tinnitus is a totally different subject and may, or may not, have anything to do with compression of jugular vein, therefore impossible to say if it’d improve or go away.
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Hey Barry, checking in to see how You’re doing? Did you have a second surgery for the other side with Dr C? Did you have a diagnosis of SCDS ? I’m 3 weeks out with Dr C and so far so good. Some accessory nerve issues but I can live with it. Will BSSNY guide you through this also?
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Hi, I only needed the one side (my dominant one) done. My scar is looking so much better now. Side of face still pins and needle feeling in some areas. I’m being tested for SCDS via some additional imaging and some vng / VEMP testing next Friday.
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Hope the testing shows what else is going on @Barrootz 
Let us know how you get on!
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Thanks. So many things are better, and I’m so appreciative for that. I just wish the dizziness would stop……hoping these tests show something that is fixable/treatable.
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The scar looks great! I’m glad that you didn’t need the other side done. What doctor you going to see to check on the scds?? I still have the pulsatile tinnitus also. But I’m only 4 weeks out. I’m glad to read that you’re doing well otherwise.
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Dr. Costantino is sending me to NYC to see Dr. Roufus for the extensive vestibular testing. That coupled with additional imaging ought to clearly show whether I do, or do not, have SCDS. Fingers crossed for good data.
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Good luck- hoping they get to the bottom of it! Glad Dr C. Is open to the idea and is thinking outside the box
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How are you doing @lilwider , are you healing okay? 
Thank you for checking in on me. I think I’m doing well. Many symptoms on my list are not being checked off anymore. Headaches are very few, numbness on the face and ear is better but still there. I do have clicking in the throat and tightness in my neck. A little dizziness and pressure in the head and eyes from time to time. My pulsatile tinnitus is better I think still there but better. I have always had 2 spots in my head that is sensitive that creates pain and symptoms and it’s still bothersome sometimes. Anxiety was better but has shown up a bit since I got my driving privileges. But I think a lot of the symptoms I have now is from me actually doing some things now. Though I know enough not to over do it- my body has been sedate for 3 weeks. I think my worst issue right now is the accessory nerve, I have some limited motion in my right arm and tends to get very fatigued and hurts. It’s like I have to think in order to move arm properly. This has created my muscle structure on my right to be very off and tight including my neck. It’s better than what it was but it’s has effected my sleeping even more. It’s hard to get comfortable. And when I wake it hurts the most and I have to stretch and I use red light to help loosen it up. I am still early in the healing I think and I am optimistic that I’m going in the right direction. I’ll know more when I ask questions June 27 on my next follow-up
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Good news that you’ve seen improvements, @lilwider! You’re correct about being in early recovery. More time will bring more healing. 
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