Thanks for the response, Jules! I am glad to hear that the venogram and pressure gradient testing are part of the ES protocol and that I am hopefully still on the right track. I will make sure and let Dr. Hepworth know that the radiologist did not move my head in different positions when doing the US. As far as seeing someone for the vemogram, Dr. Hepworth suggested I see Dr. Hui or Dr. Kaminsky. He said to see whoever I can get in to see the fastest. I have to travel for either or these doctors, so that isn’t really an issue. I am just hoping that some ppl. can join this conversation and help me to decide which doctor they think is best. To be completely honest, I feel like I am dying and I’ve just had this for so long that I have a strong fear that this may never get better. I am just worried about how long it is going to take for me to see one of these experts for the venogram of my brain sinuses.
It appears from the appointment notes that Dr. Hepworth is concerned about IH. He noted that he wants the venogram of my dural venous sinus, left sigmoid and cavernous sinuses. He said if a blockage is found in these areas that it could be stented. This is why I am not sure if ES is even on the table anymore or if he thinks the issue is solely potential blockages in my brain. This is why I am trying to figure out if there is a connection between ES and having blockages higher up in the “stream” from the jugular vein.
I was expecting/hoping for him to say that the styloids are compressing my jugular veins and the fix will be to have them removed. It wasn’t that clear cut, however. I am just hoping I can get into see one of these specialists for the venogram and God willing that I am still moving closer to feeling better. I would appreciate any other info/insight you might have. Thanks so much Jules!