Hi Blossom! Thank you for reaching out and helping me during this extremely difficult time! I just had my venogram with Dr. Hui a week ago. It turns out that all the veins in my brain appear fine, just blocked up from the bilateral compression between my styloids and C1. No more wondering what is causing my issues. I am so relieved to finally have answers, but so nervous about getting better now that we know what is causing my problems. My emotions are everywhere!! My jugluar veins collapse more during rotation of my head and I have developed collaterals to try and get the blood flowing faster from my brain to my heart while these jugular veins are being pinched off. Intercranial pressures rise during my head rotations.
Did you happen to get a bad pressure headache after the venogram? My head pressure has been awful since the procedure. Dr. Hui said that some ppl will get headaches from the procedure because you are adding contrast etc. (extra pressure) to a brain that is already experiencing high pressure. I’m really hoping it goes away soon. I see Dr. Hepworth next Tuesday and I am praying that he can give me something to help with these debilitating headaches now that we know exactly where my issues are. I am so grateful he has taken the time to really investigate what is going on with me and to help me find answers! Please forgive me because my brain is not fully functioning, you said that Plavix has really helped you, right? What all did it help you with, symptom wise? Headaches and dizziness are my worst symptoms. Thank you again for your help! 