That’s fantastic news!! I’m glad you got such a quick response from Dr. Nakaji’s ofc!!
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Great to hear! Hope he can help when your imaging is reviewed!
Hi! So interesting reading about your experience with all of this..How are you doing since your last surgery?
And this is such an important point/factor to consider- other soft tissues (other than C1 and the styloid) possibly contributing to IJV compression. Do you think all of the Dr’s who deal with IJV compression are equipped to deal with the other soft tissues during surgery..? I Imagine it it likely not known until they have you opened up…
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You’re right, quite often it isn’t found until surgery, you’d think with the comprehensive imaging some members have all would be obvious but often it seems there are surprises! Sometimes you can get a clue by seeing a compression nowhere near bony structures so an indication it could be a muscle causing it, but members have found nerves also causing compression as well as other blood vessels, or scar tissue. The doctors experienced with VES usually check that the blood vessel is flowing better before closing the incision.
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@crw20 - Since I didn’t have the typical symptoms of IJV compression, but it was obvious in my imaging, my recovery was less dramatic than for people who have the full spectrum of terrible symptoms. I mostly wanted mine decompressed to see if it would restore some of the hearing I’ve lost in my left ear. Sadly it didn’t, however, after I had the surgery, Dr. Hepworth found that I have some bone missing from my inner ear (too much was taken out during an inner ear surgery in 2019, by another ENT surgeon, to try to save my hearing back then) which has left me w/ chronic loud tinnitus & hyperacusis in spite of my hearing loss. Dr. Hepworth is now working w/ me to try to find someone who can put a bone patch in to try to at least reduce the tinnitus & hyperacusis.
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