ES having surgery 6 years ago

Hallo I had a Eagle syndrome surgery 6 years ago and from 3 months I having again pain and my Pulsatile tinnitus is back (it was nearly disappeared) … i had only MRI, and there was nothing to see… i have light pain around the hyoid, pressures this half of my head, no strength, headache, light pain in clavicle and licht dizzy …
Was asking by my self what happens to the styloid ligament after the surgery?
Cut this ligament hanging there be the cause?

The styloid process could have re-grown; it does very occasionally. I think that unless the stylo-hyoid ligament is calcified, it is often left in. If it was calcified & not removed properly I guess that it could cause problems, otherwise there could be some scar tissue?.. but a CT would be a good idea to see what’s going on.

Thank you, have a visit doctor the 20/4

I will tell him and let you know…

Thank you very much

Met vriendelijk groet,
Romano Massimo

Jules, one dr says the tissue is inflamed and it need a cortisone injection…

This Dr didn’t see me… talk on the phone… have also maid appointment whit him the 21/4

Met vriendelijk groet,
Romano Massimo

Jules, did you have cases of scar tissue years after surgery? Or problems with the ligaments left?

Met vriendelijk groet,
Romano Massimo

Hi @Mass, I’m sorry you are having troubles. In case this helps you- I had a problem with scar tissue, and now it’s gone. I had cold laser treatment once a week and a specialist neck massage everyother week. It took about a year of treatments. If you end up getting cold laser treatment - make sure they use the cone attachment to avoid the thyroid. Best wishes.

Hi Romano,
I have a hard time believing that you would be getting symptoms just from scar tissue this long after surgery. I agree w/ what Jules said, you should try to get a CT scan to take another look at your styloids & stylohyoid ligaments.

I find it curious that a doctor would give you any kind of diagnosis over the phone just based on your symptoms. Glad you have an actual appointment later this month. Make sure you at least ask about a follow-up CT scan.

A cortisone or lidocaine shot can relieve the symptoms temporarily but if the cause is something other than inflammation, the pain will come back.

Isaiah thanks for your support, will keep you informed! The great problem is to find a doctor with al lot of experience with eagle syndrome surgery… I live in Belgium
Met vriendelijk groet,
Romano Massimo

Is it not possible to see the surgeon you had surgery with? Your best option really is to try to get another CT, just to see what is going on, & to get it evaluated to see the length of the styloid processes left, & to see if there’s any calcification of ligaments. I don’t know what your health care system is like, would your GP/ primary care doctor be able to order one for you, or refer you to an ENT? Then when you know what’s causing this, you can take it from there. As well as ENTs, Otolaryngologists/ skull base surgeons are a good bet to try & see for ES.
(Maybe it would be possible for you to travel to Germany otherwise, if the scan shows anything? There’s one doctor on the list, I know of another one that Michael saw, haven’t had a chance to update the list.)

Jules, my surgeon has left Belgium for New Zealand … I have appointments with another of his team the 20/4

I will ask for ct scan … I can also go to Germany… what is the name of the doctor?

Met vriendelijk groet,
Romano Massimo

The German doctors we have on the list are:
Dr Liebehenschel at Heidberg Klinic, Hamburg,
Professor Rudolp Reich, Uniklinik, Bonn,
Dr Nils Heim & Dr Andreas Schon, Bonn.
And also we’ve been given the name of Professor Dr Martin Kunkel, Bochum- he’s done a documentary about ES apparently (haven’t seen it myself), not sure if he does surgery as well.
Hope this helps, shame your original surgeon has left, & let us know how you get on with the CT.
Jules

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Thank you very much Jules…

Met vriendelijk groet,
Romano Massimo

Jules, have there been cases of problem with styloid ligament years after surgery styloidectomy?

Met vriendelijk groet,
Romano Massimo

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Often the ligaments are removed when the styloids are shortened so there is no chance that they will calcify later. If they remain, there is a possibility they could create a problem years later. I’m not sure if there are documented cases of this though. Jules may know.

I don’t think I’ve read about any, the only occasional problems post-surgery that I know of has been when pieces of styloid processes haven’t been removed, not enough of the styloid process has been removed originally, or styloid processes have regrown. I guess in theory it’s possible though, maybe other members might have experience with this? I don’t remember reading any on the forum.

Thank you
Met vriendelijk groet,
Romano Massimo

Dr Diagnose hyoid syndrome … start with NSAIDs for 4 weeks and have ct scan next week

Hope the medication helps, & hope the CT will give some clarity…

:crossed_fingers:t2:

Met vriendelijk groet,
Romano Massimo

Had cortisone injection 3 weeks ago, it helps, symptoms are less but I still have a lot of pain, need to wait 2 months says the doctor…