Thank you for taking time to share your experience and the challenges associated.
Like you, I am exhausted - mostly due to always feeling like I am being choked, have blocked airway, or there is a large lump in my throat.
It’s hard to be alone in this but yet here I can find comfort with others that understand me.
Thank you for responding! I spoke with a speech therapist who introduced me to some methodologies to help with my throat when it closes. I am also avoiding any food 2-3 hrs before I am going to bed or lying down.
Wow - that is expensive. I suppose if it reduced my pain from a 6-7+ to a 1-2, I would pay anything to be free of this torment.
Thank you! Will do. I plan to be more active here - that is one of my goals. Leaning in to help others is a good part of the healing process for me.
I am glad you are finding some relief with Dr. O and those he recommended.
Nerve meds helped a little, but they were never a long lasting solution and weight gain always followed.
I will keep you posted about my journey. Dr. O didn’t see any metal clips when I spoke with him a few days ago but he did want me to have some additional labs to rule out a few things.
I would love to see your video when it is done!!!
Dr. Hackman was covered by insurance as are most of the other MDs. Dr. O has built quite the private pay following and patients are willing to pay privately for the procedure. I wonder what insurance would pay him if he was credentialed with them.
It’s outrageously expensive. I’m glad I paid it, though, because my surgery ended up being extremely complicated and Osborne wasn’t even sure he could get my left styloid out. It ended up going fine, but it took forever, a little over 4 hours. My right side only took 3 hours.
Have you had CT scan of your head and neck done yet to see if the ligaments are calcified or elongated? Have you had any other imaging or tests for the globus sensation and throat issues, like an endoscopy or a barium swallow?
We’ll like having you back, @JPB 
, but I’m sorry you’re here because you still have nasty symptoms. 
Yes. I am going in to see another specialist soon too. Dr O is going to inject my neck with some medicine that helps reduce the scare tissue - that sounds lovely ;).
Thank you!!
I hope that helps- will be interesting as scar tissue is something we often get asked about…do you know what it is & how long it could potentially take to help? 
Do you know the name of the medication Dr. O will be injecting into your neck to reduce the scar tissue? I have hypermobile ehlers danlos so I’m slightly worried my styloidectomies might not scar normally. That’s cool he’s doing that for you, I hope it helps!
Pls do. I hope everything works out for you to feel better soon with the solutions. Mine does show unnecessary surgical clips (left side) on the images and still has an elongated styloid (right side). Will keep you and others posted on my video. It takes time. I still have ES symptoms. It is not always easy for me until then.
I sure appreciate this group and your ongoing support!!!
My heart is heavy for all of you struggling!!!
I don’t have that name - I will figure that out.
I have had 2 surgeries - styloidectomy, and hyoid bone related surgery, so I am sure there is scar tissue. Also, the right side of my neck always has more water weight than the other.
Thank you all!!
He told me I would know within the first 7-10 days.