Feeling lost, unheard

Ya I just canceled it , I just didn’t feel going on with it .

@Jules @Isaiah_40_31

It’s ok that you cancelled since you don’t feel ready for the surgery. I’ve heard tonsillectomies for adults are tremendously painful, & the pain lasts for a while. I can’t imagine dealing w/ tonsillectomy pain by just taking panadol. An anti-inflammatory would be much more helpful.

Usually w/ ES surgeries, pain is somewhat bad the first week, but by the second week it begins settling down a bit. If you ice & sleep w/ your head elevated plus keep to the schedule the doctor gives you for pain meds, the pain is much more tolerable. I think in the UK you get more powerful pain killers (opioids?) after surgery, but I’m not sure. @Jules could speak to that better than I can.

There may be a point at which you really can’t live with your symptoms anymore, & surgery will feel like the best choice. We’re here for you if/when you get to that point.

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Thank you so much for kind words @Isaiah_40_31

So when I did it back home , he actually left a little part of tonsils both sides and had it done again with Mr Hughes 2022 , I remember I was shaking and heart rate was high etc when I was in hospital to do it with mr Hughes , they tried to calm me down then I did it and woke up didn’t feel a thing the entire recovery from my second tonsillectomy went very well

Didn’t feel a thing because of the pain meds

It’s just trauma is horrible, things stay with you no matter what , even if there are other surgeries that went well

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I’m sorry that you felt too anxious to go through with the surgery, but maybe there’s a reason for that…I’m sorry that you’ve had a traumatic experience in the past :hugs:

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Thanks Jules :folded_hands: @Jules

I’m seeing Mr Hughes on Wednesday, hope he’s not upset

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How are things with you?

Hi @Jules happy new year !

I spoke with Mr Hughes he wasn’t upset at all he told me no worries and I need to be 100% because it’s a significant surgery.

Honestly I’m still up and down , my biggest problem now is the ulcers on tongue it just cause strange symptoms when it shows up , ulcers showed up again this morning even after taking penicillin 2.4 injection last Monday .

The problem with the ulcers is that when they show up I get nerve pain around shoulders , upper back , neck etc shooting nerve pain down my arms it’s very weird and it’s not getting better since July I keep getting these ulcers .

I told Mr Hughes during the call and he told me it’s a good idea seeing a neurologist.

I’m seeing the neurologist next week and if he can’t
help I’ll see a dermatologist that specializes
in systematic pain that is caused by ulcers .

If dermatologist can’t help too , my only option is do get a biopsy.

I also found a device that stimulates the vagus nerve but it’s pretty expensive ( please see attached below) I’m thinking of getting it , it’s FDA approved. I’ll ask the neurologist too it might help with the symptoms until I’m able to get the surgery done .

I’m seeing a new physiotherapist clinic too that can help with pelvic pain ( that’s something else that I had long time ago ) and shoulders, chest , neck and jaw pains .

@OMM9420
Has anyone suggested your tongue ulcers could be related to ES. The symptoms you get when the ulcers come seem related to nerves that can commonly be irritated by ES. It would be a “first” on our forum that someone’s body reacts to ES by getting tongue ulcers, but perhaps your elongated styloids are causing a chemical dysfunction/imbalance internally, & the ulcers are the result. Just thinking out loud here.

Is your pelvic pain on the left side or in your whole pelvis? If it’s left side, you may want to look into Nutcracker Syndrome.

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Hi @Isaiah_40_31 its just weird that it started in July after this girl , so don’t know if it’s ES or not but I don’t think it’s ES I think something happened after this girl .

The pelvic is all pelvic, sometime the right side more . It was caused by something called chronic prostatits started when I was 18 . Treated 2020 but still get pelvic pain

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I hope the neurologist can help you, it’s certainly weird, but our bodies do seem to act strangely when there’s inflammation going on- just look at trigger points for example, how a tight muscle can cause pain a way away! I had myofascial release massage recently as tight shoulder & neck muscles were flaring trigeminal nerve pain (there’s not really an anatomical explanation for that as the TN emerges from the base of the skull & the pain eased when muscles further down were released, unless these tight muscles put my neck slightly out of alignment?!). That might be something to look into to help with your neck, back & shoulders?
Do you have a dry mouth or dry eyes at all? Quite a few of us with ES have symptoms of Sjogrens Syndrome too, which is an autoimmune disease…

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I do get dry mouth , weird taste , dry eyes not so much .

I do get massages , and seeing physiotherapist but it only helps on the day and I wake up next day with pains again

My sleep started to get bad again, I woke up yesterday with the ulcers again same spot like every time when it shows up on the right and left side . And yesterday I slept at 10pm woke up at 1:30am haven’t slept at all again @Jules

@OMM9420 - It sounds like getting the ulcers biopsied would be a good next step. It’s quite odd that you get other symptoms in your body that seem to coincide with them. I hope you’re able to get an answer to what’s causing them.

So sorry, too, that you can’t sleep. That’s the worst!! Is it your pain/symptoms keeping you awake?

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Actually it’s not really the pain , I just woke up today at around 1:40 slept at 10pm woke at 12am but was able to fall asleep right away then woke up 1:40 unable to sleep until 6am .

I took magnesium and Valium yesterday even soaked my feet in warm water with Epsom salt, apple vinegar and lavender. Nothing I still woke up after 3 hours . Even the Valium didn’t help much

when I wake up actually my body feels as if it’s fully rested and feeling very energized that’s why I’m unable to fall asleep again because I don’t feel sleepy or tired . Around 5am to 6am this is when I feel the crash and started to feel sleepy again but it’s too late to go back to sleep around this time because I’ve got things to do throughout the day so I just push through.

It’s very very strange , this never happened to me before and it all started after seeing the girl before the girl I actually used to get into bed around 8 to 9pm maybe fall asleep around 9 or 10 now it’s difficult to even fall asleep .

Also before the girl I used to wake up around 4am to 5am sometimes even 6am because of ES so if sleep at 10 wake up 4 that’s 6 hours but never 3 hours ! That’s a first .

The most annoying part is feeling energized like I don’t even feel that much pain so it’s not from the pain.

My infectious disease said he 100% believes that I got no sexual transmitted disease from the girl but have no idea why I’m getting these symptoms.

I used ChatGPT submitted all my tests results reports , antibiotics I took and even pictures of the ulcers and ChatGPT confirmed what all the doctors said it’s not sexual transmitted disease because I took doxycycline, flagyl then penicillin 2.4 Monday 29th and if it was an std then the ulcers wouldn’t have showed up again after the penicillin because it’s one of the strongest antibiotics.

ChatGPT recommended not to self prescribe antibiotics anymore enough taking antibiotics it’s not std , it analyzed the photos said the ulcers loom like geographic tongue like what every doctor said .

It has no explanation why I wake up energetic, I did mention I’m going to neurologist so it suggested some questions to ask the neurologist then if he can’t help I might see dermatologist that specializes in ulcers caused by autoimmune problems .

Don’t know what to do anymore @Isaiah_40_31 I’m really fed up , it’s always been like this for me whenever I get into dating my body immunity not that strong I get weird things so I’ve always avoided it because I’m afraid of getting anything.

That’s ChatGPT:

I have migratory tongue ulcers, neuropathic pain, sleep fragmentation, Eagle syndrome, chronic pain history, normal labs, and symptoms that flare with stress and exertion.”

Core questions to ask:

  1. Does this pattern fit central sensitization or neuropathic pain?
  2. Could glossopharyngeal or trigeminal nerve irritation explain tongue symptoms?
  3. Is Eagle syndrome likely contributing to nerve or autonomic symptoms?
  4. Does my sleep pattern suggest autonomic hyperarousal?
  5. Are there non-addictive medications that calm nerve firing if needed?
  6. Do you see any red flags that would require biopsy or urgent testing?
  7. Would imaging review (CT/MRI already done) be useful or unnecessary?

For neurologist .

Preparing for the dermatologist visit (copy this)

Bring a short summary:

“I have recurrent migratory tongue ulcers that heal completely within days, normal STI tests, negative fungal/bacterial tests, normal biopsy elsewhere, Eagle syndrome, chronic pain history, and flares linked to stress and exertion.”

Questions to ask:

  1. Does this fit geographic tongue or recurrent aphthous stomatitis?
  2. Could this be inflammatory rather than infectious?
  3. Do you see any indication for biopsy right now?
  4. If biopsy is done, when and where is best?
  5. Are topical treatments preferable to systemic ones?
  6. Any systemic conditions worth screening — or is none indicated?

Important:
• Ask them to look, not biopsy immediately
• Biopsy only if they see something atypical

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can understand why this has been so distressing — you’ve done extensive, appropriate testing, seen multiple specialists, and the symptoms keep cycling without a clear answer. I’ll try to put all of this together in a structured, medical way, not dismissing what you’re feeling, but also grounding it in what the evidence so far strongly suggests.

Big picture first (important)

Based on everything you described:

  • Repeated STI testing (swabs + blood) at appropriate windows → consistently negative

  • Endoscopy + biopsy normal

  • Oral medicine + infectious disease specialists involved

  • No persistent ulcer, lesions heal completely

  • Inflammatory markers normal

  • No immunodeficiency signs

  • Ulcers recur, migrate, resolve in days

:backhand_index_pointing_right: This pattern does NOT fit an active infection, including:

  • HIV

  • Syphilis

  • HSV (oral herpes)

  • Gonorrhea / chlamydia

  • HPV

  • Fungal or bacterial oral infection

If this were infectious:

  • Lesions would progress, not migrate

  • Blood markers would change

  • Biopsies would show pathology

  • Antibiotics would not repeatedly “reset” symptoms only temporarily

Why antibiotics seemed to help (but didn’t cure)

This is a key clue.

Both doxycycline and flagyl have:

  • Anti-inflammatory effects

  • Effects on oral microbiome balance

  • Mild immune-modulating properties

So improvement during antibiotics does not mean infection.

It often happens in inflammatory, immune-mediated, or neuropathic oral conditions.

The fact that symptoms return after stopping antibiotics strongly supports:

  • Non-infectious cause

What this DOES fit (most likely explanations)

1. Geographic tongue / migratory glossitis (VERY consistent)

This diagnosis actually fits extremely well:

  • Lesions move locations

  • Appear/disappear over days

  • Cause burning, tingling, weird taste

  • Can leave temporary surface texture changes

  • Often worsened by:

    • Stress

    • Anxiety

    • Illness

    • Hormonal changes

    • Immune activation

Many people don’t realize:

Geographic tongue can ulcerate, tingle before appearing, and feel neurological.

It also does not always look dramatic.

2. Recurrent aphthous stomatitis (minor type)

  • Small ulcers lasting 4–7 days

  • Heal completely

  • Can recur frequently

  • Triggered by:

    • Stress

    • Sleep disruption

    • Immune shifts

    • Nutrient fluctuations (even if labs are “normal”)

3. Oral neuropathic pain / burning mouth spectrum

This explains:

  • Tingling before ulcers

  • Nerve-like rib pain, neck stiffness, head pain

  • Weird taste without visible lesion

  • Symptoms waxing and waning

  • Normal tests

This is real, not psychological — but is often amplified by stress and hypervigilance.

4. Stress–immune feedback loop (very important)

You mentioned:

“I’ve always had symptoms like this before the girl — it just got amplified after”

That’s a huge clue.

What likely happened:

  • A stressful sexual encounter → fear of infection

  • Heightened immune activity + nervous system sensitization

  • Oral tissues (which are very sensitive) become reactive

  • Symptoms loop and amplify

This does not mean “it’s all in your head”

It means your nervous system is stuck in high alert

What this is VERY unlikely to be

Given everything done:

:cross_mark: HIV (window periods fully covered)

:cross_mark: Syphilis (multiple blood tests + swab negative)

:cross_mark: HSV (would not behave like this)

:cross_mark: Oral cancer (impossible with this pattern + biopsy)

:cross_mark: Chronic infection hiding somewhere

About the body pains, ribs, neck, sleep issues

These are classic signs of:

  • Central sensitization

  • Autonomic nervous system dysregulation

  • Chronic stress response

The sleep pattern you described (early sleep → wake → can’t return) is very typical of anxiety-driven hyperarousal.

Why a biopsy wasn’t urgent — and still may not be needed

Biopsy is useful when:

  • A lesion persists

  • Changes appearance

  • Does not heal

Your lesions:

  • Heal completely

  • Change locations

  • Disappear before appointments

That makes biopsy low-yield, which is why your doctors weren’t alarmed.

What actually helps going forward (practical steps)

1. Stop chasing infections

You have objectively ruled them out. Continuing to retest keeps the nervous system activated.

2. Focus on symptom management, not cause-hunting

Oral medicine approaches that often help:

  • Topical corticosteroid mouth rinse (if prescribed)

  • Avoid irritants (acidic, spicy, alcohol mouthwash)

  • SLS-free toothpaste

  • Zinc or B-complex trial (even if levels normal)

3. Address the nerve/stress component

This is not optional for recovery:

  • Sleep regulation

  • Stress reduction (CBT, mindfulness, therapy)

  • Sometimes low-dose neuropathic pain meds (only if needed, via doctor)

4. Accept fluctuation

These conditions flare and settle. Healing is non-linear.

The most important reassurance

Nothing in your story suggests:

  • A missed dangerous disease

  • A progressive condition

  • Something contagious or life-threatening

What it does suggest is a benign but frustrating oral inflammatory/neuropathic condition, amplified by stress and fear — and those are treatable, even if they take time.

If you want, I can:

  • Help you decide whether a biopsy is still worthwhile

  • Help you break the symptom–anxiety loop

  • Go over specific treatments oral medicine doctors use

  • Help you explain this clearly to future doctors

Just tell me what would help most right now.

ChatGPT if you want to have a read @Isaiah_40_31

Thank you for explaining all of that — this extra detail actually clarifies things a lot, and I want to be very clear and grounded here.

I’ll address your questions in layers, because several real conditions are interacting, not one single cause.

1. Can Eagle syndrome cause tongue ulcers?

Short answer:

:backhand_index_pointing_right: Eagle syndrome does NOT directly cause oral ulcers, but it can absolutely contribute to pain, irritation, nerve symptoms, and hypersensitivity in the tongue, throat, jaw, ear, neck, and face.

Why Eagle syndrome still matters here

Eagle syndrome (elongated styloid process / calcified stylohyoid ligament) can irritate:

  • Glossopharyngeal nerve (CN IX)

  • Trigeminal nerve branches

  • Vagus nerve

  • Local soft tissues

This can cause:

  • Tongue soreness or burning

  • Throat pain (often one-sided)

  • Referred pain to ear, jaw, ribs, neck

  • Foreign-body sensation

  • Taste disturbances

  • Autonomic symptoms (heart rate, sleep, adrenaline surges)

:warning: But:

Eagle syndrome does not create true mucosal ulcers.

What it can do is:

  • Make the tongue feel raw, inflamed, sore

  • Lower the threshold for minor inflammatory lesions (like aphthae or geographic tongue)

So think of Eagle syndrome as a sensitizer, not the root cause.

2. Penicillin injection & syphilis fear — what this tells us

You had:

  • Multiple negative syphilis blood tests

  • Negative syphilis swab

  • No progressive lesion

  • No systemic syphilis markers

And now:

  • 2.4 million units benzathine penicillin

  • Ulcers still appeared in the same migrating pattern

This is actually very strong confirmation that:

:cross_mark: This is not syphilis

:cross_mark: Not a hidden infection

:cross_mark: Not something antibiotics can “fix”

Penicillin would stop syphilitic lesions from recurring, not allow the same pattern to continue.

At this point, further STI-directed treatment is medically unnecessary and potentially harmful (you already know your body reacts badly to antibiotics).

3. The sleep pattern you described is VERY telling

Fall asleep → wake after 2–3 hours → extreme alertness → cannot sleep even with exhaustion

This is not insomnia from pain alone.

This is classic autonomic nervous system hyperarousal.

Key features:

  • Sudden adrenaline surge

  • “Wired but tired”

  • eating used to calm you (parasympathetic activation)

  • Now even those don’t work

  • Magnesium glycinate ineffective

This is not a deficiency problem.

This is nervous system dysregulation.

Eagle syndrome can contribute, but this pattern is seen in:

  • Central sensitization

  • Chronic pain syndromes

  • Long-term antibiotic exposure

  • Health anxiety loops

  • Chronic pelvic pain history (important)

4. Your history of chronic prostatitis is NOT separate

This is crucial.

Chronic prostatitis / chronic pelvic pain syndrome is now understood as:

  • A neuro-inflammatory condition

  • Involving central pain sensitization

  • Autonomic dysfunction

  • Stress–immune–nerve feedback loops

People with this history often develop:

  • Heightened pain responses

  • Sensitivity to supplements

  • Exercise intolerance

  • GI irritation

  • Migrating pain

  • Flare-based illness patterns

So your tongue symptoms are not random — they fit into a long-standing pain sensitization framework.

5. Why supplements and exercise make things worse

You’re not “weak” or deficient.

Your system is overreactive.

Supplements

Even benign things like:

  • Vitamin C

  • Zinc

  • Magnesium

…can trigger:

  • Mast cell activation

  • GI irritation

  • Nerve excitation

  • Inflammatory flares

This happens in people with:

  • Central sensitization

  • Mast cell instability

  • Dysautonomia

Exercise

Same principle:

  • Exercise increases cortisol, adrenaline

  • In sensitized systems → pain flare

  • Especially neck/throat pain (Eagle syndrome area)

6. Why your tongue still feels bumpy after ulcers heal

This is normal in:

  • Geographic tongue

  • Aphthous healing

  • Inflamed lingual papillae

The tissue remodels after inflammation.

It does not mean infection or permanent damage.

7. What this is most accurately called

You don’t have “one disease”.

You have a clustered condition involving:

  • Geographic tongue / aphthous-type oral inflammation

  • Eagle syndrome (structural nerve irritation)

  • Central sensitization

  • Autonomic nervous system hyperarousal

  • History of chronic pain syndrome

All real, all documented, all non-dangerous — but very uncomfortable.

8. What will NOT help (important to stop)

  • More antibiotics

  • More STI testing

  • More supplements “just in case”

  • Forcing exercise through pain

  • Constant oral self-checking (this reinforces nerve firing)

9. What

actually

helps going forward

Oral symptoms

  • Bland diet

  • SLS-free toothpaste

  • Avoid acidic/spicy foods during flares

  • Topical steroid rinse only if oral medicine prescribes

Nervous system regulation (most important)

  • Fixed wake time (even if you slept badly)

  • Light exposure in the morning

  • No supplement stacking

  • Gentle movement only (stretching > cardio)

  • Pain-focused CBT or somatic therapy (very effective for CPPS-type patterns)

Eagle syndrome

If symptoms are worsening:

  • ENT or maxillofacial follow-up

  • Imaging review

  • Conservative management unless severe (surgery is not urgent unless vascular symptoms)

Final reassurance (please read carefully)

Nothing you described suggests:

  • Infection

  • Cancer

  • Missed STI

  • Progressive disease

What you’re dealing with is a sensitized system stuck in high gear — and that can calm down, but not through more testing or antibiotics.

If you want, next I can:

  • Help you create a calming plan for nighttime awakenings

  • Explain why your body reacts so strongly to benign triggers

  • Help you decide whether Eagle syndrome treatment is worth pursuing now

  • Help you break the flare cycle

You’re actually making very rational, well-sequenced decisions right now. Nothing you wrote sounds impulsive or unsafe — it sounds like someone who’s finally shifting from “What disease do I have?” to “How do I calm a system that’s clearly overstimulated?” That’s the correct direction.

I’ll go through each point clearly and help you decide what’s worth doing, what’s optional, and what to be careful with.

1. Neurologist → Dermatologist → Biopsy (in that order)

Neurologist

:check_mark: Good idea

A neurologist can assess:

  • Glossopharyngeal / trigeminal nerve irritation

  • Central sensitization

  • Autonomic dysfunction

  • Sleep–wake dysregulation

  • Whether symptoms fit neuropathic pain vs inflammatory

This fits much better than infectious workups at this stage.

Dermatologist (oral/systemic focus)

:check_mark: Also reasonable

A dermatologist experienced with:

  • Aphthous disorders

  • Oral mucosal inflammatory diseases

  • Immune-mediated conditions

…can help rule out rare systemic causes, even though nothing so far suggests one.

Biopsy — when it actually helps

:red_exclamation_mark: Biopsy is NOT urgent

Biopsy is useful only if:

  • A lesion persists >2–3 weeks

  • One lesion does not heal

  • There is hardening, bleeding, or color change

  • Doctors visually think it’s atypical

Your pattern:

  • Migrating

  • Healing

  • Symmetrical at times

  • Disappears before appointments

:backhand_index_pointing_right: That makes biopsy low yield and more anxiety-provoking than helpful right now.

If you do biopsy later, do it only when a lesion is fully present — not a healing one.

2. Valium tonight — is this reasonable?

Given what you described:

  • Severe sleep fragmentation

  • Autonomic hyperarousal

  • Failed magnesium

  • Previously helped by parasympathetic triggers

:check_mark: Using Valium occasionally, as prescribed, is reasonable

Important boundaries:

  • Not nightly

  • Use it as a reset, not a solution

  • Lowest effective dose

  • No alcohol

  • Don’t combine with other sedatives

Valium can:

  • Reduce muscle tension (jaw, neck, Eagle syndrome area)

  • Calm autonomic firing

  • Improve sleep continuity short-term

:warning: It will not fix the underlying issue — but it can break a bad cycle, which sometimes is exactly what’s needed.

3. Nurosym (vagus nerve stimulation)

This actually makes a lot of sense for your symptom pattern.

Nurosym targets:

  • Autonomic imbalance

  • Pain sensitization

  • Sleep regulation

  • Inflammatory tone

This is aligned with your condition, not a random gadget.

Realistic expectations:

  • Effects are subtle at first

  • Think weeks, not days

  • Best combined with therapy + gentle routines

  • If it helps even 10–20%, that’s meaningful

Key advice:

  • Start low and slow

  • Don’t overuse

  • Track sleep and pain, not tongue visuals

4. EMDR with Dr Pauline Chiarizia

:check_mark: Excellent choice

Especially with your history of:

  • Chronic prostatitis

  • Health-related trauma

  • Body hypervigilance

  • Flare-based illness pattern

EMDR helps:

  • Decouple threat perception from bodily sensation

  • Reduce nervous system overactivation

  • Lower symptom amplification

This is not saying symptoms are psychological — it’s treating the brain–body loop that sustains them.

5. Men’s health physio + TMJ physio (same day)

:check_mark: Very appropriate.

These areas are deeply connected:

  • Jaw ↔ neck ↔ tongue ↔ pelvic floor

  • Eagle syndrome worsened by jaw tension

  • Pelvic pain syndromes and oral pain often coexist neurologically

Just one caution:

  • Ask them to start gently

  • No aggressive release initially

  • You want down-regulation, not “fixing” tissue

6. Overall assessment of your plan

This is actually a textbook multimodal approach for complex pain/sensitization syndromes:

  • Neurology :check_mark:

  • Oral dermatology :check_mark:

  • Autonomic modulation :check_mark:

  • Trauma-informed therapy :check_mark:

  • Physical therapy :check_mark:

  • Judicious medication use :check_mark:

This is the opposite of “giving up”.

7. What I’d recommend you

pause

for now

  • Further antibiotics

  • More STI testing

  • Supplement experimentation

  • Daily oral self-inspection

  • Forcing exercise

These all reinforce the loop.

8. One grounding reassurance (important)

Nothing in your story points to:

  • A dangerous missed diagnosis

  • A progressive neurological disease

  • Cance

  • Infection

Your system

is over-protective, not broken.

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Some nerve pain meds can help with sleeping too- I take Amitriptyline which definitely helps, I do wake regularly but can usually get back to sleep. But side effects of this can be a dry mouth, which might worsen your tongue ulcers. There are some gels/ mouth sprays which can help with dry mouth, like biotene gel, might be worth a try?
I wonder if your vagus nerve is being affected , giving you that hyper/ overactive sort of symptoms? Other members have had this from ES…
Might be an idea (sorry if you’ve already tried this, I can’t remember) having some of the live yoghurt or kefir drinks to restore your gut biome, or fermented foods like kimchi if these don’t affect your tongue & make it sore?
Interesting about the links with your pelvic symptoms being linked, I’ve learnt a new one!

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@Jules actually the pelvic pain is from another condition I got called chronic prostatits got it when I was 18.

I tried amitriptyline didn’t work for me , it made my symptoms worse.

I do have a lot yogurt and kefir .

Also just tried the device I got nurosym that stimulates the vagus nerve. it helped a little but it’s still the first use people tend to see difference after a 2 weeks to a month

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My favorite muscle relaxant is Tizanidine. It comes in 4MG pills (prescription) and I’ve taken up to 4 at a time. They work wonderfully for getting you to sleep within 30 min, but do not have the morning hangover of sleeping pills and Tylenol PM. I like to take the pills ahead of my evening shower, then till I’m into bed, I’m usually ready to drift off shortly. Usually! There are times though that serious pain slows the “drifting off” feeling, but overall, my #1 muscle relaxant recommendation is Tizanidine. My doctor said it’s a newer drug and they are finding that it’s not habit-forming or addictive like many sleeping or relaxant pills are.
Best wishes — it’s no fun to lay awake when “the whole world” (is what it FEELS like) is sleeping.

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Tizanidine is a relaxant, not a nerve medication, so keep that in mind. If you’re after nerve meds, you’ll have to try something else. Though I think you could take Tizanidine with nerve meds too. Actually, I use Gabapentin (have yet to decide if it even works) along with Tizanidine…

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You may find Chios Mastic gum useful to improve your oral, stomach and gut microbiota as well as anxiety. No side effects either. If you can’t chew it you can suck the “tears”.

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