I am glad I found this site. It gave me a lot of good information. Over the last five years I have seen 2 ENT’s, a neurologist, dentist, family doctor, two ER docs and my endocrinologist. No one could figure out why I had terrible jaw/ear/throat pain. Three years ago I started with vertigo and have been dizzy almost constantly since then. I was told it would go away. Luckily, my throat started to click when I swallow. That latest development led me to Eagle’s.
Two weeks ago I went to a a 3rd ENT, who i have become friends with at church. I told him that I think I have ES and he looked at me funny. He said that would have certainly been caught by now. Anyway he said he would gladly look at my scans and also ordered new ones.
This week I went into his office and he told me I should be wearing the white lab coat that day because I was right! It would have been missed again because the radiologist didn’t mention anything about it so he called him to have him measure my Styloid because he suspected ES. The radiologist called back and said “yeah, he sure has it!”
My right side actually has grown down and fused with my neck. (I’m guessing about 6-7cm. and extremely calcified) During the physical examine my friend thinks he either broke it or detached it from my neck (the pain sent me through the roof). But it has given me some relief from my symptoms because everything can move around a little when I swallow.
Long story short - on 11/19 I am having surgery less than three weeks from the day I uttered the words “I think I have ES”. Don’t give up even if the medical profession gives up on you. Luckily, I acquired a friend who is an ENT at the right time in my life and he took me seriously.
I will post about how my surgery goes and when my pain and dizziness goes away. I can’t wait to feel normal again.
Sorry for the long post.