@Clarebear - You didn’t mention any symptoms that sound like you may have vascular compression. Since resolving IJV compression is Dr. Hepworth’s focus, you could see another surgeon who isn’t so specialized to help you. I didn’t have vascular compression as part of my ES symptoms so was able to see someone sooner for an initial consult & surgery. I was fortunate not to have to travel far, but many of our members have had to go quite a distance to see someone who is an experienced ES surgeon.
There are 3 doctors listed in Nebraska who have all done successful ES surgeries for members on this forum. I don’t know how experienced they are. Dr. Cognetti in Philadelphia is very experienced & Dr. Hackman in NC is also very experienced & does bilateral surgery in one surgery which some of our members have preferred. Dr. Cognetti does telehealth intiial consults, but Dr. Hackman does not so you’d have to go to NC to see him.
•Dr Daniel Lydiatt, University of Nebraska Medical Center, Methodist Clinic . Clinic 402- 559- 1700, Office 402- 559- 7775, Methodist Clinic 402- 354- 5890 https://www.md.com/doctor/daniel-lydiatt-md
•Dr William Lydiatt, 8303 Dodge St., Omaha, NE, (402) 354-5244, Dr. William M. Lydiatt, MD - Omaha, NE - Head and Neck Surgical Oncology, Otolaryngology
•Dr Coughlin, Methodist Hospital, Omaha (Head and Neck Oncologist, has done external skull base surgery 7-10 times, and steroid injections) https://www.mhsdoctors.com/physicians/11116003
Here’s one thread where Dr. Daniel Lydiatt is mentioned:
You can search for others posts for all 3 doctors using the magnifying glass search tool in the upper right.
•Dr David Cognetti, Thomas Jefferson University Hospital, Philadelphia 215- 955- 6760 (Has done many successful surgeries on members). Only removes ligaments if calcified. https://hospitals.jefferson.edu/find-a-doctor/c/cognetti-david-m.html
•Dr. Trevor Hackman, UNC Ear, Nose and Throat Oncology Clinic – in the N.C. Cancer Hospital, 101 Manning Drive, Chapel Hill, NC 27514, (984) 974-6484