Hi dharmadel,
Sadly, you aren’t the first person this forum to be treated the way you have been. A number of our members have even been sent to psychiatrists because their doctors ultimately thought they were hypochondriacs. It really is pathetic. A little medical understanding of the cranial nerves & the symptoms they can cause when irritated would point to a more central “something” causing the problem & that would be elongated styloids &/or calcified stylohyoid ligaments. Unfortunately, many doctors heard about ES in passing in medical school so it’s not something that readily comes up on their diagnostic “radars”.
I understand you don’t have lots of resources that allow you to travel for medical care, but if the doctor your PCP sends you to is also uncooperative as far as helping to check for ES goes, it would be wise for you to get in touch w/ one of the doctors on the ES Doctors’ List for your state. You can use the gray magnifying glass icon, above right, to search each doctor’s name to see if there have been any posts about each one. This may help give you an idea of who would like to see.
https://forum.livingwitheagle.org/t/us-doctors-familiar-with-es-2019/4752
Connecting the Dots by Sherri Jonas chronicles her journey in getting her son’s ES diagnosis. It’s a quick read & available on Amazon. I think you will appreciate what she went through in light of your journey so far.